Article

Quality of Life Research

, Volume 23, Issue 6, pp 1859-1868

Impact of autism in adolescents on parental quality of life

  • Amaria BaghdadliAffiliated withCentre Ressources Autisme, CHRU MontpellierLaboratoire Epsylon, University of Montpellier, EA 4556 Email author 
  • , René PryAffiliated withCentre Ressources Autisme, CHRU MontpellierLaboratoire Epsylon, University of Montpellier, EA 4556
  • , Cécile MichelonAffiliated withCentre Ressources Autisme, CHRU MontpellierLaboratoire Epsylon, University of Montpellier, EA 4556
  • , Cécile RattazAffiliated withCentre Ressources Autisme, CHRU MontpellierLaboratoire Epsylon, University of Montpellier, EA 4556

Rent the article at a discount

Rent now

* Final gross prices may vary according to local VAT.

Get Access

Abstract

Purpose

To study the impact of autism spectrum disorders (ASDs) on parental quality of life (QoL) at adolescence using the parental–developmental disorders-quality of life scale (Par–DD-QoL).

Methods

One hundred and fifty-two mothers of adolescents with ASD completed Par–DD-QoL. This scale assesses the following dimensions: emotional, daily disturbance and global QoL. This cross-sectional study uses a subset of data collected at the final time of a follow-up study (EpiTED cohort).

Results

A polytomic regression identified an increase in aberrant behavior scores as the major independent risk factor for parental QoL. The identified protective factors were the increase in daily living, communication and object cognition scores and a higher number of siblings.

Conclusions

Those results suggest that there is a negative effect of externalizing behaviors and a protective effect of adaptive skills, communication and object cognition on parental QoL. Study limitations and implications are discussed.

Keywords

Parental quality of life Autism spectrum disorders Risk factors Adolescents Cohort