Medicine, Health Care and Philosophy

, Volume 18, Issue 2, pp 203–215

The pendulum time of life: the experience of time, when living with severe incurable disease—a phenomenological and philosophical study

  • Sidsel Ellingsen
  • Åsa Roxberg
  • Kjell Kristoffersen
  • Jan Henrik Rosland
  • Herdis Alvsvåg
Scientific Contribution

DOI: 10.1007/s11019-014-9590-9

Cite this article as:
Ellingsen, S., Roxberg, Å., Kristoffersen, K. et al. Med Health Care and Philos (2015) 18: 203. doi:10.1007/s11019-014-9590-9

Abstract

The aim of this study was to gain a deeper understanding of the experience of time when living with severe incurable disease. A phenomenological and philosophical approach of description and deciphering were used. In our modern health care system there is an on-going focus on utilizing and recording the use of time, but less focus on the patient’s experience of time, which highlights the need to explore the patients’ experiences, particularly when life is vulnerable and time is limited. The empirical data consisted of 26 open-ended interviews with 23 participants receiving palliative care at home, in hospital or in a nursing home in Norway. The theoretical frameworks used are mainly based upon K. Martinsens philosophy of care, K. E. Løgstrup phenomenological philosophy, in addition to C. Saunders’ hospice philosophy, L. Feigenberg’s thanatology and U. Qvarnström’s research exploring patient’s reactions to impending death. Experience of time is described as being a movement that moves the individual towards death in the field of opposites, and deciphered to be a universal, but a typical and unique experience emerging through three integrated levels: Sense of time; where time is described as a movement that is proceeding at varying speeds. Relate totime; where the awareness of limited life changes the understanding of time to be more existential. Being in time; where limited time seems to clarify the basic living conditions and phenomena of life. The existence of life when the prospect of death is present is characterized by emotional swings that move within polarizing dimensions which is reflected in the experience of time illustrated as the moves of the pendulum in a grandfather clock. The diversity of the experience of time is oscillating between going fast or slow, being busy or calm, being unpredictable but predictable, safe or unsafe and between being good or bad, depending on the embodied situation of the individual.

Keywords

Experience of time End of life Palliative care Phenomenology Philosophy Phenomena of life Polarizing dimensions 

Copyright information

© Springer Science+Business Media Dordrecht 2014

Authors and Affiliations

  • Sidsel Ellingsen
    • 1
    • 2
  • Åsa Roxberg
    • 1
    • 3
  • Kjell Kristoffersen
    • 4
  • Jan Henrik Rosland
    • 5
    • 6
  • Herdis Alvsvåg
    • 1
  1. 1.Department of Nursing and Health CareHaraldsplass Deaconess University CollegeBergenNorway
  2. 2.Department of Public Health and Primary Care, Faculty of Medicine and DentistryUniversity of BergenBergenNorway
  3. 3.School of Health and Caring SciencesLinnaeus UniversityVäxjöSweden
  4. 4.Department of Psychosocial HealthUniversity of AgderKristiansandNorway
  5. 5.Sunniva Centre for Palliative Care, The Medical DepartmentHaraldsplass Deaconess HospitalBergenNorway
  6. 6.Department of Surgical Sciences, Faculty of Medicine and DentistryUniversity of BergenBergenNorway