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Do Unmet Needs Differ Geographically for Children with Special Health Care Needs?

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Abstract

The purpose of this study was to identify geographic differences in health indicators for children with special health care needs (CSHCN). It was hypothesized that geographic differences in unmet health care needs exist among CSHCN by region in the United States. Data were obtained from the National Survey of Children with Special Health Care Needs, 2005–2006. Nine variables representing unmet needs were analyzed by geographic region. The region with the highest percent of unmet needs was identified for each service. Logistic regression was utilized to determine differences by region after controlling for age, gender, ethnicity, race, federal poverty level, relationship of responder to child, insurance status, severity of condition, and size of household. A total of 40,723 CSHCN were represented. Crude analysis demonstrated that the greatest unmet need for routine preventive care, specialist care, prescription medications, physical/occupational/speech therapy, mental health care, and genetic counseling occurred in the West. The greatest unmet need for preventive dental care, respite care, and vision care occurred in the South. Significant differences between regions remained for six of the nine services after controlling for potential confounders. Geographic differences in unmet health care needs exist for CSHCN. Further delving into these differences provides valuable information for program and policy planning and development. Meeting the needs of CSHCN is important to reduce cost burden and improve quality of life for the affected child and care providers.

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References

  1. Strickland, B. B., Singh, G. K., Kogan, M. D., et al. (2009). Access to the medical home: new findings from the 2005–2006 National Survey of Children with Special Health Care Needs. Pediatrics, 123, e996–e1004.

    Article  PubMed  Google Scholar 

  2. McPherson, M., Arango, P., Fox, H., et al. (1998). A new definition of children with special health care needs. Pediatrics, 102, 137–140.

    Article  PubMed  CAS  Google Scholar 

  3. Goldhagen, J., Remo, R., Bryant, T., et al. (2005). The health status of southern children: A neglected regional disparity. Pediatrics, 116(6). Available at: www.pediatrics.org/cgi/content/full/116/6/e746.

  4. Newacheck, P. W., Hughes, D. C., Hung, Y. Y., et al. (2000). The unmet health needs of America’s children. Pediatrics, 105(4), 989–997.

    Article  PubMed  CAS  Google Scholar 

  5. Lo, K., & Fulda, K. G. (2008). Impact of predisposing, enabling, and need factors in accessing preventive medical care among U.S. children: results of the National Survey of Children’s Health. OMPC, 2(12). Available at: www.om-pc.com/content/2/1/12.

  6. van Dyck, P. C., Kogan, M. D., McPherson, M. G., Weissman, G. R., & Newacheck, P. W. (2004). Prevalence and characteristics of children with special health care needs. Archives of Pediatrics and Adolescent Medicine, 158, 884–890.

    Article  PubMed  Google Scholar 

  7. Fulda, K. G., Lykens, K., Bae, S., & Singh, K. (2009). Factors for accessing a medical home vary among CSHCN from different levels of socioeconomic status. Maternal and Child Health Journal, 13, 445–456.

    Article  PubMed  Google Scholar 

  8. Fulda, K. G., Lykens, K. A., Bae, S., & Singh, K. (2009). Unmet mental health care needs for children with special health care needs stratified by socioeconomic status. Child and Adolescent Mental Health, 14(4), 190–199.

    Article  Google Scholar 

  9. Lykens, K. A., Fulda, K. G., Bae, S., & Singh, K. P. (2009). Differences in risk factors for children with special health care needs (CSHCN) receiving needed specialty care by socioeconomic status. BMC Pediatrics, 9(48): Available at: www.biomedcentral.com,1471-2431/9/48.

  10. Singh, G. K., Strickland, B. B., Ghandour, R. M., & van Dyck, P. C. (2009). Geographic disparities in access to the medical home among US CSHCN. Pediatrics, 124, S352–S360.

    Article  PubMed  Google Scholar 

  11. Skinner, A. C., Slifkin, R. T., & Mayer, M. L. (2006). The effect of rural residence on dental unmet need for children with special health care needs. The Journal of Rural Health, 22(1), 36–42.

    Article  PubMed  Google Scholar 

  12. Wang, G., & Watts, C. (2007). Genetic counseling, insurance status, and elements of medical home: Analysis of the National Survey of Children with Special Health Care Needs. Maternal and Child Health Journal, 11, 559–567.

    Article  PubMed  Google Scholar 

  13. Nageswaran, S. (2009). Respite care for children with special health care needs. Archives of Pediatrics and Adolescent Medicine, 163(1), 49–54.

    Article  PubMed  Google Scholar 

  14. Blumberg, S. J., & Bramlett, M. D. (2005). Comparing states on outcomes for children with special health care needs. Maternal and Child Health Journal, 9S(2), S121–S128.

    Article  Google Scholar 

  15. Shattuck, P. T., & Parish, S. L. (2008). Financial burden of families of children with special health care needs: Variability among states. Pediatrics, 122(1), 13–18.

    Article  PubMed  Google Scholar 

  16. Blumberg, S. J., Olson, L., Frankel, M., et al. (2003). Design and operation of the National Survey of Children with Special Health Care Needs, 2001. Vital Health Statistics Series, 1(41), 1–136.

    Google Scholar 

  17. United States Census Bureau. (2010). Geographic areas reference manual. Retrieved July 5, 2010, from www.census.gov/geo/www/garm.html.

  18. Mayer, M. L., Skinner, A. C., & Slifkin, R. T. (2004). Unmet need for routine and specialty care: Data from the National Survey of Children with Special Health Care Needs. Pediatrics, 113(2), e109–e115.

    Article  PubMed  Google Scholar 

  19. Weller, W. E., Minkovitz, C. S., & Anderson, G. F. (2003). Utilization of medical and health-related services among school-age children and adolescents with special health care needs (1994 National Health Interview Survey on Disability [NHIS-D] baseline data). Pediatrics, 112(3), 593–603.

    Article  PubMed  Google Scholar 

  20. Skinner, A. C., & Slifkin, R. T. (2007). Rural/urban differences in barriers to and burden of care for children with special health care needs. Journal of Rural Health, 23(2), 150–157.

    Article  PubMed  Google Scholar 

  21. Kogan, M. D., Newacheck, P. W., Blumberg, S. J., et al. (2010). State variation in underinsurance among children with special health care needs in the United States. Pediatrics, 125(4), 673–680.

    Article  PubMed  Google Scholar 

  22. Parish, S. L., Shattuck, P. T., & Rose, R. A. (2009). Financial burden of raising CSHCN: Association with state policy choices. Pediatrics, 124(Supp 4), S435–S442.

    Article  PubMed  Google Scholar 

  23. Gnanasekaran, S. K., Boudreau, A. A., Soobader, M. J., Yucel, R., Hill, K., & Kuhlthau, K. (2008). State policy environment and delayed or forgone care among children with special health care needs. Maternal and Child Health Journal, 12, 739–746.

    Article  PubMed  Google Scholar 

  24. Beers, N. S., Kemeny, A., Sherritt, L., & Palfrey, J. S. (2003). Variations in state-level definitions: Children with special health care needs. Public Health Reports, 118, 434–447.

    Article  PubMed  Google Scholar 

  25. Heberlein, M., Brooks, T., Guyer, J., Artiga, S., & Stephens, J. (2012). Performing under pressure: annual findings of a 50-state survey of eligibility, enrollment, renewal, and cost-sharing policies in Medicaid and CHIP, 2011–2012, Kaiser Commission on Medicaid and the uninsured.

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Correspondence to Kimberly G. Fulda.

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Fulda, K.G., Johnson, K.L., Hahn, K. et al. Do Unmet Needs Differ Geographically for Children with Special Health Care Needs?. Matern Child Health J 17, 505–511 (2013). https://doi.org/10.1007/s10995-012-1029-4

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  • DOI: https://doi.org/10.1007/s10995-012-1029-4

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