McPherson, M., Arango, P., Fox, H., et al. (1998). A new definition of children with special health care needs. Pediatrics, 102
Centers for Disease Control and Prevention, Health Resources and Services Administration (2005). Healthy People 2010: Objective 16; Maternal, infant, and child health [accessed on October 2, 2005]. Available at: http://www.healthypeople.gov/Document/HTML/Volume2/16MICH.htm
New Freedom Commission on Mental Health. (2003). Achieving the promise: Transforming mental health care in America. Final report. DHHS Pub. No. SMA-03–3832. Rockville, MD: US Department of Health and Human Services, Substance Abuse and Mental Health Services Administration. http://www.hhs.gov/newfreedom/init.html
Association of Maternal and Child Health Programs (AMCHP). 2003. Reaching the children: The relationship between Title V and Part C [accessed on October 4th, 2005]. Available at: http://www.amchp.org/policy/RTC.pdf
Federal Register. Centers for Medicare and Medicaid Services. (2002). Medicaid program, Medicaid managed care. Final rules, 67(115), 40988–41116.
Bethell, C. D., Read, D., Stein, R. E., et al. (2002). Identifying children with special health care needs: Development and evaluation of a short screening instrument. Ambulatory Pediatrics, 2
Bethell, C. D., Read, D., Neff, J., et al. (2002). Comparison of the children with special health care needs screener with the questionnaire for identifying children with chronic conditions—Revised. Ambulatory Pediatrics, 1
Blumberg, S. J., Olson, L., Frankel, M., et al. (2003). Design and operation of the National Survey of Children with Special Health Care Needs 2001. Vital Health Statistics, 1(41).
Blumberg, S. J., Olson, L., Frankel, M., et al. (2005). Design and operation of the National Survey of Children’s Health 2003. Vital Health Statistics, 1(43).
van Dyck, P. C., Kogan, M. D., Heppel, D., et al. (2004). The National Survey of Children’s Health: A new data resource. Maternal and Child Health Journal, 8(3).
van Dyck, P. C., Kogan, M. D., McPherson, M. G., et al. (2004). Prevalence and characteristics of children with special health care needs. Archives Pediatrics Adolescents Medicine, 158
Agency for Research and Quality (AHRQ) (2004). MEPS HC-060 2001 Full year consolidated data file, April 2004. http://www.meps.ahrq.gov/mepsweb/data_stats
Agency for Research and Quality (AHRQ) (2004). MEPS HC-070 2002 Full year consolidated data file, December 2004. http://www.meps.ahrq.gov/mepsweb/data_stats
Agency for Research and Quality (AHRQ) (2005). MEPS HC-079 2003 Full year consolidated data file, November 2005. http://www.meps.ahrq.gov/mepsweb/data_stats
Agency for Research and Quality (AHRQ) (2006). MEPS HC-089 2004 Full year consolidated data file, October 2006. http://www.meps.ahrq.gov/mepsweb/data_stats
Chevarley, F. M. (2005). Utilization and expenditures for children with special health care needs. Agency for Healthcare Research and Quality Working Paper No. 05010. Available at http://www.meps.ahrq.gov/papers/workingpapers/WP_Feb2005_FMC.pdf
Davidoff, A. J. (2004). Identifying children with special health care needs in the National Health Interview Survey: A new resource for policy analysis. Health Services Research, 39
Stein, R. E.,K., & Silver, E. J. (1999). Operationalizing a conceptually based noncategorical definition. A first look at US children with chronic conditions. Archives of Pediatric and Adolescent Medicine, 153, 68–74.
Schuman, H., & Presser, S. (1981). Questions and answers in attitude surveys: Experiments on question form, wording, and context. Academic Press, New York.
Scherpenzeel, A. (2001). Mode effects in panel surveys: A comparison of CAPI and CATI. Swiss Household Panel, Federal Office of Statistics.
Kasprzyk, D. (2005). Chapter IX, Measurement error in household surveys: sources and measurement. Household sample surveys in developing and transition countries (pp. 171–198). New York: United Nations.
Shenker, N., & Gentleman, J. (2001). On judging the significance of differences by examining the overlap between confidence intervals. The American Statistician, 55(3), August 2001.
Read, D., Bethell, C., Blumberg, S. J., et al. (forthcoming). An evaluation of the linguistic and cultural validity of the Spanish language version of the Children with Special Health Care Needs Screener. Maternal and Child Health Journal.
Cooper, W. O., Hickson, G. B., Fuchs, C., et al. (2004). New users of antipsychotic medications among children enrolled in TennCare. Archives Pediatrics Adolescent Medicine, 158
Cox, E. (2003). Patterns of prescription use among commercially insured children. NICHD Colloquia—Scientific issues in implementing Best Pharmaceuticals for Children Act (BPCA), Bethesda, MD.
Medco Health Solutions, Inc. (2004). Medco study reveals pediatric spending spike on drugs to treat behavioral problems; 77 percent four-year spending rise linked to increased use and medicine costs.
Groves, R. M., Singer, E., & Corning, A. (2000). Leverage-salience theory of survey participation: Description and an illustration. Public Opinion Quarterly, 64
Goyder, J. (1987). The silent minority: Nonrespondents on sample surveys. Westview Press, Boulder CO.
Groves, R. M., Presser, S., & Dipko, S. (2004). The role of topic interest in survey participation decisions. Public Opinion Quarterly, 68
Hess, J. M., Pascale, J., Rothgeb, J., et al. (2001). The effects on person-level versus household-level questionnaire design on survey estimates and data quality. Public Opinion Quarterly, 65
Read, D., & Bethell, C. D. (2002). Resource manual for states and managed care organizations to identify adults and children with special health care needs. Center for Medicaid and Medicare Services [accessed on October 4th, 2005]. Available at http://www.cahmi.org
U.S. Department of Health and Human Services (HHS), Health Resources and Services Administration, Maternal and Child Health Bureau (2004). The National Survey of Children with Special Health Care Needs Chartbook 2001. Rockville, MD: U.S. Department of Health and Human Services.
Child and Adolescent Health Measurement Initiative (CAHMI). (2005). Data Resource Center on Child and Adolescent Health [accessed October 3rd, 2005]. Available at http://www.cshcndata.org