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Design of a Personal Health Record and Health Knowledge Sharing System Using IHE-XDS and OWL

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Abstract

Personal Health Record systems (PHRs) provide opportunities for patients to access their own PHR. However, PHRs are teeming with medical terminologies, such as disease and symptom names, etc. Patients need readily understandable and useful health knowledge in addition to their records in order to enhance their self-care ability. This study describes a Personal Health Record and Health Knowledge Sharing System (PHR&HKS) whereby users not only can maintain and import their PHR, but also can collate useful health Web resources that are related to their personal diseases. Furthermore, they can share the collated Web resources with any user with the same diseases and vice versa. To fulfill these objectives, IHE Cross-Enterprise Document Sharing (XDS) architecture was adopted to share and integrate the PHR. A registry ontology, consisting of part of the XDS document metadata attributes, the ICD-9-CM code, and part of the Dublin Core Metadata Element Set (DCMES), was created to enhance the health knowledge collating and sharing functions. The system was then tested and evaluated by 30 users. Among these individuals, 24 (81 %) held positive views on the ease of use and usefulness of the system while the remainder, who held either neutral (14 %) or negative (5 %) attitudes, were identified as individuals who were somewhat unwilling to maintain any PHR or share any information with others.

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Conflicts of interest

The authors thank the National Science Council of Taiwan for supporting this research under the grant of NSC 94-2218-E-010-005, NSC 95-2218-E-010-002 and NSC 96-2218-E-010-001.

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Authors and Affiliations

  1. Institute of Public Health, National Yang-Ming University, No.155, Sec.2, Linong Street, Beitou District, Taipei City, 112, Taiwan, Republic of China

    Li-Hui Lee

  2. Institute of Biomedical Informatics, National Yang-Ming University, No.155, Sec.2, Linong Street, Beitou District, Taipei City, 112, Taiwan, Republic of China

    Yi-Ting Chou & Der-Ming Liou

  3. Department of Information Management, National Taipei University of Nursing and Health Sciences, No. 365, Ming-Te Road, Beitou District, Taipei City, 112, Taiwan, Republic of China

    Ean-Wen Huang

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  1. Li-Hui Lee
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  4. Der-Ming Liou
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Correspondence to Der-Ming Liou.

Appendix

Appendix

The users’ satisfaction questionnaire for the Personal Health Record and Health Knowledge Sharing (PHR&HKS) prototype system.

(The original questionnaire was in Chinese)

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Lee, LH., Chou, YT., Huang, EW. et al. Design of a Personal Health Record and Health Knowledge Sharing System Using IHE-XDS and OWL. J Med Syst 37, 9921 (2013). https://doi.org/10.1007/s10916-012-9921-4

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