Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon
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The cohort of individuals with autism spectrum disorder (ASD) diagnosed as part of the first wave of what is often referred to as the autism epidemic is rapidly approaching adulthood. This cohort represents only the proverbial tip of the iceberg with some reports noting that 70% of the currently identified individuals with ASD are less than 14-years old. These numbers represent a looming crisis of unprecedented magnitude for adults with autism, their families, and the ill-prepared and underfunded adult service system charged with meeting their needs. A review of the current literature on outcomes for adults with ASD indicates that, independent of current ability levels, the vast majority of adults on the spectrum are either unemployed or underemployed and, further, that large numbers of adults with autism remain without any appropriate services. Many have had inadequate transition programming including little attention to service coordination, minimal direct family involvement and/or absence of treatment based on evidence-based practices. Lastly, issues related to staff and provider recruitment and retention present significant, systemic challenges to the provision of effective services. As such there is a significant and growing need for greater attention to individual needs of adults with ASD if we are provide the opportunity for a positive quality-of-life.
- Bettleheim, B. (1967). The empty fortress. New York: Free Press.
- Celiberti, D. A., Alessandri, M. O., Fong, P. L., & Gill, M. J. (1993). Past, present, and future trends in behavioral treatment of ASD. Behavior Therapist, 16, 127–132.
- Centers for Disease Control and Prevention. (2009). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, United States 2006.Surveillance Summaries, MMWR 2009;58 (No. SS#10).
- Dew, D. W., & Alan, G. W. (Eds.). (2007). Rehabilitation of individuals with autism spectrum disorders (Institute on Rehabilitation Monograph No. 32). Washington, DC: The George Washington University, Center for Rehabilitation Counseling Research and Education.
- Ferster, C. B., & DeMeyer, M. K. (1962). A method for the experimental analysis of the behavior of autistic children. American Journal of Orthopsychiatry, 32, 89–98. CrossRef
- Fixsen, D. L., Blase, K. A., Timbers, G. D., Wolf, M. M. (2007). In search of program implementation: 792 replications of the Teaching-Family model. The Behavior Analyst Today. (Winter). Accessed on-line on November 22, 2008 at: http://findarticles.com/p/articles/mi_6884/is_1_8/ai_n28461037/pg_12?tag=artBody;col1.
- Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatric and Adolescent Medicine, 161, 343–349. CrossRef
- Gardner, J. M. (1972). Teaching behavior modification to young professionals. Journal of Applied Behavior Analysis, 5, 517–521. CrossRef
- Gerhardt, P. F., & Holmes, D. L. (2005). Employment: Options and issues for adolescents and adults with autism spectrum disorders. In F. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism, pervasive developmental disorders (3rd ed., pp. 1087–1101). Hoboken, NJ: Wiley.
- Gernsbacher, A. M., Dawson, M., & Goldsmith, H. H. (2005). Three reasons not to believe in an autism epidemic. Current Directions in Psychological Science, 14, 55–58. CrossRef
- Hagner, D., & Cooney, B. F. (2005). “I Do That for Everybody”: Supervising employees with autism. Focus on Autism and Other Developmental Disabilities, 20(2), 91–97. CrossRef
- Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45, 212–229. CrossRef
- Janicki, M. P., Castellani, P. J., & Norris, R. G. (1983). Organization and administration of service delivery systems. In J. Matson & J. Mulick (Eds.), Handbook of mental retardation (pp. 3–23). New York: Pergamon Press.
- Jennes-Coussens, M., Magill-Evans, J., & Koning, C. (2006). The quality of life of young men with Asperger syndrome: A brief report. Autism, 10, 403–414. CrossRef
- Kirby, D. (2005). Evidence of harm. New York: St. Martin’s Press.
- Koller, R. A. (2000). Sexuality and adolescents with autism. Sexuality and Disability, 18(2), 125–135. CrossRef
- Lovaas, O. I., & Simmions, J. Q. (1969). Manipulation of self-destruction in three retarded children. Journal of Applied Behavior Analysis, 2, 143–157. CrossRef
- Mandell, D. S., Walrath, C. M., Manteuffel, B., Sgro, G., & Pinto-Martin, J. A. (2005). The prevalence and correlates of abuse among children with autism served in comprehensive community-based mental health settings. Child Abuse and Neglect, 29, 1359–1372. CrossRef
- Matson, J. L., Benavidez, D. A., Compton, L. S., Paclawskyj, T., & Baglio, C. (1996). Behavioral treatment research of autistic persons: A review of the research from 1980 to the present. Research in Developmental Disabilities, 17, 433–465. CrossRef
- Moffitt, T. E. (1990). Juvenile delinquency and Attention Deficit Disorder: Boys’ developmental trajectories from age 3 to age 15. Child Development, 61, 893–910. CrossRef
- National Autism Center. (2009). Findings and conclusions. Randolf, MA: National Autism Center.
- Parish, S. L. (2002). Residential services in the U.S. presentation at the international meeting of the Rett Syndrome Association. Chicago, IL, May, 2002.
- Paterson, P. (2007). How well do young offenders with Asperger syndrome cope in custody?: Two prison case studies. British Journal of Learning Disabilities, 36, 54–58. CrossRef
- Quinn, M. M., Poirier, J. M., & Garfinkel, L. (2005). Girls with mental health needs in the juvenile justice system: Challenges and inequities confronting a vulnerable population. Exceptionality, 13, 125–139. CrossRef
- Reid, D. H., & Parsons, M. B. (2006). Motivating human service staff: Supervisory strategies for maximizing work effort and enjoyment (2nd ed.). Morgantown, NC: Habilitative Management Consultants.
- Reid, D. H., Parsons, M. B., & Green, C. W. (1989). Staff management in human services: Behavior research and applications. Springfield, IL: Charles C. Thomas.
- Rimland, B. (1964). Infantile autism: The syndrome and its implications for a neural theory of behavior. New York: Appleton-Century-Crofts.
- Romanczyk, R. G., Arnstein, L., Soorya, L. V., & Gillis, J. (2003). The myriad of controversial treatments for autism: A critical evaluation of efficacy. In S. O. Lilienfeld, S. J. Lynn, & J. M. Lohr (Eds.), Science and pseudoscience in clinical psychology (pp. 363–395). New York: Guilford Press.
- Rosenwasser, B., & Axelrod, S. (2001). The contribution of applied behavior analysis to the education of people with autism. Behavior Modification, 25(5), 671–677. CrossRef
- Schneider, K., Kinlow, M. R., Galloway, A. N., & Ferro, D. (1982). An analysis of the effects of implementing the Teaching-Family model in two community-based group homes. Child Care Quarterly, 11, 298–311. CrossRef
- Shattuck, P. T. (2006). The contribution of diagnostic substitution to the growing administrative prevalence of autism in US special education. Pediatrics, 117, 1028–1037. CrossRef
- Sulzer-Azaroff, B., & Mayer, G. R. (1991). Behavior analysis for lasting change. New York: Holt, Rinehart & Winston.
- Targett, P. S., & Wehman, P. (2008). Integrated employment. In P. Wehman, M. D. Smith, & C. Schall (Eds.), Autism and the transition to adulthood: Success beyond the classroom. Baltimore, MD: Paul H. Brookes.
- Taylor, B. A., Hughes, C. E., Richard, C. E., Hoch, H., Coello, R. A., & Coello, (2004). Teaching teenagers with autism to seek assistance when lost. Journal of Applied Behavior Analysis, 37, 79–82. CrossRef
- U.S. Department of Health and Human Services. (2004). The supply of direct service professionals serving individuals with intellectual disabilities and other developmental disabilities. Report to Congress. Washington DC: Author. Available on line at http://www.ancor.org/issues/shortage/aspe_dsp_11-09-04.doc.
- Williams, K., Mellis, C., & Peat, J. K. (2005). Incidence and prevalence of autism. Advances in Speech and Language Pathology, 7, 31–40. CrossRef
- Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon
Journal of Contemporary Psychotherapy
Volume 41, Issue 1 , pp 37-45
- Cover Date
- Print ISSN
- Online ISSN
- Springer US
- Additional Links
- Autism spectrum disorders
- Adult services
- Evidence-based practice