Social Participation Among Young Adults with an Autism Spectrum Disorder
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Investigating social participation of young adults with an autism spectrum disorder (ASD) is important given the increasing number of youth aging into young adulthood. Social participation is an indicator of life quality and overall functioning. Using data from the National Longitudinal Transition Study 2, we examined rates of participation in social activities among young adults who received special education services for autism (ASD group), compared to young adults who received special education for intellectual disability, emotional/behavioral disability, or a learning disability. Young adults with an ASD were significantly more likely to never see friends, never get called by friends, never be invited to activities, and be socially isolated. Among those with an ASD, lower conversation ability, lower functional skills, and living with a parent were predictors of less social participation.
- Baron-Cohen, S., & Wheelwright, S. (2003). The friendship questionnaire: An investigation of adults with Asperger syndrome or high-functioning autism, and normal sex differences. Journal of Autism and Developmental Disorders, 33, 509–517. doi:0.1023/A:1025879411971. CrossRef
- Bertrand, J., Mars, A., Boyle, C., Bove, F., Yeargin-Allsopp, M., & Decoufle, P. (2001). Prevalence of autism in a United States population: the Brick Township, New Jersey, investigation. Pediatrics, 108, 1155–1161. doi:10.1542/peds.108.5.1155. CrossRef
- Billstedt, E., Gillberg, I. C., & Gillberg, C. (2007). Autism in adults: Symptom patterns and early childhood predictors. The use of the DISCO in a community sample followed from childhood. Journal of Child Psychology and Psychiatry, 48, 1102–1110. doi:10.1111/j.1469-7610.2007.01774.x. CrossRef
- Brugha, T. S., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., et al. (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archives of General Psychiatry, 68, 459–466. doi:10.1001/archgenpsychiatry.2011.38. CrossRef
- Eaves, L. C., & Ho, H. H. (2008). Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 739–747. doi:10.1007/BF02172209. CrossRef
- Eussen, M. L. J. M, Van Gool, A. R., Verheij, F., De Nijs, P. F. A., Verhulst, F. C., & Greaves-Lord, K. (2012). The association of quality of social relations, symptom severity and intelligence with anxiety in children with autism spectrum disorders. Autism Advance. (online publication). doi: 10.1177/1362361312453882.
- Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research, 2, 109–118. doi:10.1002/aur.69. CrossRef
- Henninger, N. A., & Taylor, J. L. (2013). Outcomes in adults with autism spectrum disorders: a historical perspective. Autism, 17, 103–116. doi:10.1177/1362361312441266. CrossRef
- Hofvander, B., Delorme, R., Chaste, P., Nydén, A., Wentz, E., Ståhlberg, O., et al. (2009). Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders. BMC Psychiatry, 9. doi: 10.1186/1471-244X-9-35.
- Howlin, P. (2003). Outcome in high-functioning adults with autism with and without early language delays: Implications for the differentiation between autism and Asperger syndrome. Journal of Autism and Developmental Disorders, 33, 3–13. CrossRef
- Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45, 212–229. doi:10.1111/j.1469-7610.2004.00215.x. CrossRef
- Howlin, P., Mawhood, L., & Rutter, M. (2000). Autism and developmental receptive language disorder—A follow-up comparison in early adult life. II: Social, behavioural, and psychiatric outcomes. Journal of Child Psychology and Psychiatry, 41, 561–578. doi:10.1111/1469-7610.00643. CrossRef
- Interagency Autism Coordinating Committee. (2012). IACC strategic plan for autism spectrum disorder research—2012 update. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee. http://iacc.hhs.gov/strategic-plan/2012/index.shtml.
- IVEware. (2002). Imputation and variance estimation software [computer program]. Version 1.0. Ann Arbor: Survey Methodology Program, Survey Research Center, Institute for Social Research, University of Michigan.
- Kobayashi, R., & Murata, T. (1998). Behavioral characteristics of 187 young adults with autism. Psychiatry and Clinical Neurosciences, 52, 383–390. CrossRef
- Liptak, G. S., Kennedy, J. A., & Dosa, N. P. (2011). Social participation in a nationally representative sample of older youth and young adults with autism. Journal of Developmental and Behavioral Pediatrics, 32, 277–283. doi:0.1097/DBP.0b013e31820b49fc. CrossRef
- Mazurek, M. O., & Kanne, S. M. (2010). Friendship and internalizing symptoms among children and adolescents with ASD. Journal of Autism and Developmental Disorders, 40, 1512–1520. doi:10.1007/s10803-010-1014-y. CrossRef
- Orsmond, G. I., Krauss, M. W., & Seltzer, M. M. (2004). Peer relationships and social and recreational activities among adolescents and adults with autism. Journal of Autism and Developmental Disorders, 34, 245–256. doi:10.1023/B:JADD.0000029547.96610.df. CrossRef
- Raghunathan, T. E., Lepkowski, J. M., Van Hoewyk, J., & Solenberger, P. W. (2001). A multivariate technique for multiply imputing missing values using a sequence of regression models. Survey Methodology, 27, 85–95.
- Rubin, D. B. (1987). Multiple imputations for nonresponse in surveys. New York, NY: Wiley. CrossRef
- Seltzer, M. M., Greenberg, J. S., Taylor, J. L., Smith, L., Orsmond, G. I., Esbensen, A., et al. (2011). Adolescents and adults with autism spectrum disorders. In D. G. Amaral, G. Dawson, & D. H. Geschwind (Eds.), Autism spectrum disorders (pp. 241–252). New York: Oxford University Press. CrossRef
- Shattuck, P. T., Narendorf, S. C., Cooper, B. P., Sterzing, P., Wagner, M., & Taylor, J. L. (2012). Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics, 129, 1042–1049. doi:10.1542/peds.2011-2864. CrossRef
- Shattuck, P. T., Orsmond, G. I., Wagner, M., & Cooper, B. P. (2011). Participation in social activities among adolescents with an autism spectrum disorder. PLoS One, 6(11), e27176. doi:10.1371/journal.pone.0027176. CrossRef
- Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., Kring, S., et al. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1735–1747. doi:10.1007/s10803-006-0307-7. CrossRef
- SRI International. (2000). National Longitudinal Transition Study II (NLTS2) Sampling Plan. Menlo Park, CA: Author.
- Verdugo, M. A., Navas, P., Gómez, L. E., & Schalock, R. L. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56(11), 1036–1045. doi:10.1111/j.1365-2788.2012.01585.x. CrossRef
- Wagner, M., Kutash, K., Duchnowski, A. J., & Epstein, M. H. (2005). The Special Education Elementary Longitudinal Study and the National Longitudinal Transition Study: Study designs and implications for children and youth with emotional disturbance. Journal of Emotional & Behavioral Disorders, 13, 25–41. CrossRef
- Whitehouse, A. J. O., Watt, H. J., Line, E. A., & Bishop, D. V. M. (2009). Adult psychosocial outcomes of children with specific language impairment, pragmatic language impairment and autism. International Journal of Language & Communication Disorders, 44(4), 511–528. doi:10.1080/13682820802708098. CrossRef
- World Health Organization. (2001). International classification of functioning, disability, and health. Geneva: World Health Organization.
- Yeargin-Allsopp, M., Rice, C., Karapurkar, T., Doernberg, N., Boyle, C., & Murphy, C. (2003). Prevalence of autism in a U.S. metropolitan area. The Journal of the American Medical Association, 289, 49–55. doi:10.1001/jama.289.1.49. CrossRef
- Social Participation Among Young Adults with an Autism Spectrum Disorder
Journal of Autism and Developmental Disorders
Volume 43, Issue 11 , pp 2710-2719
- Cover Date
- Print ISSN
- Online ISSN
- Springer US
- Additional Links
- Autism spectrum disorder
- Social participation
- Young adulthood
- Industry Sectors
- Author Affiliations
- 1. Department of Occupational Therapy, Boston University, Boston, MA, 02215, USA
- 2. Brown School of Social Work, Washington University, St. Louis, MO, USA
- 3. School of Social Welfare, University of California, Berkeley, CA, USA
- 4. Waisman Center, University of Wisconsin Madison, Madison, WI, USA