Original Paper

Journal of Autism and Developmental Disorders

, Volume 38, Issue 6, pp 1147-1160

Children with Autism: Quality of Life and Parental Concerns

  • Li-Ching LeeAffiliated withDepartment of Epidemiology, Johns Hopkins Bloomberg School of Public Health Email author 
  • , Rebecca A. HarringtonAffiliated withDepartment of Epidemiology, Johns Hopkins Bloomberg School of Public Health
  • , Brian B. LouieAffiliated withDepartment of Epidemiology, Johns Hopkins Bloomberg School of Public Health
  • , Craig J. NewschafferAffiliated withDepartment of Epidemiology, Johns Hopkins Bloomberg School of Public HealthDepartment of Epidemiology and Biostatistics, Drexel University School of Public Health

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Abstract

Past research has shown that children with autism and their families have compromised quality of life (QOL) in several domains. This study examined QOL and parental concerns in children with autism during early childhood, childhood, and adolescence compared to children with Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder (ADD/ADHD) and to typical controls from a US national sample. Families with children diagnosed with autism reported more profound QOL effects than families of children with ADD/ADHD or unaffected controls. Children with autism were significantly less likely to attend religious services, more likely to miss school, and less likely to participate in organized activities. Parental concerns over learning difficulty, being bullied, stress-coping, and achievement were overwhelming in the autism group relative to the comparison groups.

Keywords

Autism ADD ADHD Quality of life Parental concern