Abstract
Purpose
The care of cancer patients involves collaboration among health care professionals, patients, and family caregivers. As health care has evolved, more complex and challenging care is provided in the home, usually with the support of family members or friends. The aim of the study was to examine perceived needs regarding the psychosocial tasks of caregiving as reported by patients and caregivers. We also evaluated the association of demographic and clinical variables with self-reported caregiving needs.
Methods
Convenience samples of 100 cancer patients and 100 family caregivers were recruited in outpatient medical and radiation oncology waiting areas—the patients and caregivers were not matched dyads. Both groups completed a survey about their perceptions of caregiving tasks, including how difficult the tasks were for them to do. Demographic information was also provided by participants.
Results
Caregivers reported providing more help in dealing with feelings than patients endorsed needing. Caregivers were also more likely than patients to report the psychosocial aspects of caregiving were more difficult for them. Lastly, caregivers were more likely to report helping with logistical issues in comparison with patients expressing this need. Race, length of time since diagnosis, and age were associated with patients’ expressed needs, while only number of hours spent providing care was associated with the caregivers’ reporting of care activities.
Conclusions
Our results suggest that patients may underestimate how difficult caregivers perceive the psychosocial aspects of caregiving to be. Also, it seems that caregivers tend to take on the psychosocial aspects of caregiving, although patients do not tend to report this need. Caregiving needs were only minimally associated with demographic variables, as was participation in caregiving tasks.
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Acknowledgments
The authors wish to acknowledge the support of the Biostatistics Core, Siteman Comprehensive Cancer Center and NCI Cancer Center Support Grant P30 CA091842.
Conflict of Interest
The authors note that this research was funded by the Siteman Cancer Center and Barnes-Jewish Hospital, the employer for Dr. Deshields, Dr. Potter, Dr. M. Kuhrik, Dr. N. Kuhrik, and Ms. O’Neill. Otherwise, there is no financial relationship that compromises the integrity of the data reported here. The authors have full control of the data and agree to make the data available to the journal to review, if needed.
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Deshields, T.L., Rihanek, A., Potter, P. et al. Psychosocial aspects of caregiving: perceptions of cancer patients and family caregivers. Support Care Cancer 20, 349–356 (2012). https://doi.org/10.1007/s00520-011-1092-1
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DOI: https://doi.org/10.1007/s00520-011-1092-1