Journal of Neurology

, Volume 245, Issue 1, pp S10-S14

PDQ-39: a review of the development, validation and application of a Parkinson’s disease quality of life questionnaire and its associated measures

  • V. PetoAffiliated withHealth Services Research Unit, Department of Public Health, University of Oxford, Institute of Health Sciences, Oxford, OX3 7LF, UK Fax: 44 1865 226711 e-mail: viv.peto@dphpc.ox.ac.uk
  • , C. JenkinsonAffiliated withHealth Services Research Unit, Department of Public Health, University of Oxford, Institute of Health Sciences, Oxford, OX3 7LF, UK Fax: 44 1865 226711 e-mail: viv.peto@dphpc.ox.ac.uk
  • , R. FitzpatrickAffiliated withHealth Services Research Unit, Department of Public Health, University of Oxford, Institute of Health Sciences, Oxford, OX3 7LF, UK Fax: 44 1865 226711 e-mail: viv.peto@dphpc.ox.ac.uk

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Abstract

Parkinson’s disease is a common degenerative neurological condition. A number of general instruments exist to measure quality of life, but these were not designed to address areas salient to a specific disease. This contribution reviews the development and validation of the PDQ-39, a short 39-item quality of life questionnaire for Parkinson’s disease. PDQ-39 data can be presented either in profile form or as a single index. This report also reviews the development and validation of a briefer measure (PDQ-8) derived from the PDQ-39, and of two summary indices (PDQ-39SI and PDQ-8SI).

Key words Quality of life Parkinson’s Disease PDQ-39 PDQ-8