The Potential of Crowdsourcing to Improve Patient-Centered Care
- Michael Weiner
- … show all 1 hide
Rent the article at a discountRent now
* Final gross prices may vary according to local VAT.Get Access
Crowdsourcing (CS) is the outsourcing of a problem or task to a crowd. Although patient-centered care (PCC) may aim to be tailored to an individual’s needs, the uses of CS for generating ideas, identifying values, solving problems, facilitating research, and educating an audience represent powerful roles that can shape both allocation of shared resources and delivery of personalized care and treatment. CS can often be conducted quickly and at relatively low cost. Pitfalls include bias, risks of research ethics, inadequate quality of data, inadequate metrics, and observer-expectancy effect. Health professionals and consumers in the US should increase their attention to CS for the benefit of PCC. Patients’ participation in CS to shape health policy and decisions is one way to pursue PCC itself and may help to improve clinical outcomes through a better understanding of patients’ perspectives. CS should especially be used to traverse the quality-cost curve, or decrease costs while preserving or improving quality of care.
- National Center for Biotechnology Information. Crowdsourcing. http://www.ncbi.nlm.nih.gov/mesh/?term=crowdsourcing. Accessed 5 Nov 2013.
- Johnston SC, Hauser SL. Crowdsourcing scientific innovation. Ann Neurol. 2009;65(6):A7–8. doi:10.1002/ana.21791. CrossRef
- Ranard BL, Ha YP, Meisel ZF, et al. Crowdsourcing: harnessing the masses to advance health and medicine, a systematic review. J Gen Intern Med. 2013;11:11.
- Institute of Medicine. Crossing the quality chasm: a new health system for the 21st century. Washington, DC: National Academy Press; 2001.
- Parvanta C, Roth Y, Keller H. Crowdsourcing 101: a few basics to make you the leader of the pack. Health Promot Pract. 2013;14(2):163–7.
- Cohn J. Citizen science: can volunteers do real research? BioScience. 2008;58(3):192–7. CrossRef
- Hussey PS, Anderson GF, Osborn R, et al. How does the quality of care compare in five countries? Health Aff (Millwood). 2004;23(3):89–99. CrossRef
- Davis K. Slowing the growth of health care costs: learning from international experience. N Engl J Med. 2008;359(17):1751–5. CrossRef
- Anderson GF, Hurst J, Hussey PS, et al. Health spending and outcomes: trends in OECD countries, 1960–1998. Health Aff (Millwood). 2000;19(3):150–7. CrossRef
- Stewart M. Towards a global definition of patient centred care. BMJ. 2001;322(7284):444–5. CrossRef
- Newbold KB, Campos S. Media and social media in public health messages: a systematic review. Hamilton: McMaster Institute of Environment & Health; 2011. http://www.mcmaster.ca/mieh/documents/publications/Social%20Media%20Report.pdf.
- International Alliance of Patients’ Organizations. Declaration on patient-centred healthcare. http://www.patientsorganizations.org/showarticle.pl?id=712&n=312. Accessed 5 Nov 2013.
- Merchant RM, Asch DA, Hershey JC, et al. A crowdsourcing innovation challenge to locate and map automated external defibrillators. Circ Cardiovasc Qual Outcomes. 2013;6(2):229–36.
- Luengo-Oroz MA, Arranz A, Frean J. Crowdsourcing malaria parasite quantification: an online game for analyzing images of infected thick blood smears. J Med Internet Res. 2012;14(6):e167. doi:10.2196/jmir.2338. CrossRef
- Graber MA, Graber A. Internet-based crowdsourcing and research ethics: the case for IRB review. J Med Ethics. 2013;39(2):115–8.
- Good BM, Su AI. Crowdsourcing for bioinformatics. Bioinformatics. 2013;29(16):1925–33.
- OpenMRS. OpenMRS. http://openmrs.org/. Accessed 29 Jan 2014.
- Norman TC, Bountra C, Edwards AM, et al. Leveraging crowdsourcing to facilitate the discovery of new medicines. Sci Transl Med. 2011;3(88):88mr1.
- Bow HC, Dattilo JR, Jonas AM, et al. A crowdsourcing model for creating preclinical medical education study tools. Acad Med. 2013;88(6):766–70. doi:10.1097/ACM.0b013e31828f86ef. CrossRef
- McCartney P. Crowdsourcing in healthcare. MCN Am J Matern Child Nurs. 2013;38(6):392. CrossRef
- Behrend TS, Sharek DJ, Meade AW, et al. The viability of crowdsourcing for survey research. Behav Res Methods. 2011;43(3):800–13. CrossRef
- Turner AM, Kirchhoff K, Capurro D. Using crowdsourcing technology for testing multilingual public health promotion materials. J Med Internet Res. 2012;14(3):e79. CrossRef
- Armstrong AW, Harskamp CT, Cheeney S, et al. Crowdsourcing in eczema research: a novel method of data collection. J Drugs Dermatol. 2012;11(10):1153–5.
- Dasgupta N, Freifeld C, Brownstein JS, et al. Crowdsourcing black market prices for prescription opioids. J Med Internet Res. 2013;15(8):e178. CrossRef
- Cameron P, Corne DW, Mason CE, et al. Crowdfunding genomics and bioinformatics. Genome Biol. 2013;14(9):134. CrossRef
- The Potential of Crowdsourcing to Improve Patient-Centered Care
The Patient - Patient-Centered Outcomes Research
Volume 7, Issue 2 , pp 123-127
- Cover Date
- Print ISSN
- Online ISSN
- Springer International Publishing
- Additional Links
- Industry Sectors
- Michael Weiner (1) (2) (3)
- Author Affiliations
- 1. Indiana University Center for Health Services and Outcomes Research, Regenstrief Institute, Inc., 1050 Wishard Boulevard, 5th floor, Indianapolis, IN, 46202-2872, USA
- 2. Department of Veterans Affairs, Center for Health Information and Communication, Veterans Health Administration, Health Services Research and Development Service CIN 13-416, Richard L. Roudebush VA Medical Center, Indianapolis, IN, USA
- 3. Indiana University School of Medicine, Indianapolis, IN, USA