Journal of Community Genetics

, Volume 2, Issue 4, pp 211–221

A pilot study of knowledge and interest of genetic counseling and testing for hereditary breast and ovarian cancer syndrome among Puerto Rican women

  • Susan T. Vadaparampil
  • Gwendolyn P. Quinn
  • Julie Dutil
  • Marieva Puig
  • Teri L. Malo
  • Jessica McIntyre
  • Rossybelle Perales
  • Euna M. August
  • Zuheily Closser
Original Article

DOI: 10.1007/s12687-011-0058-9

Cite this article as:
Vadaparampil, S.T., Quinn, G.P., Dutil, J. et al. J Community Genet (2011) 2: 211. doi:10.1007/s12687-011-0058-9
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Abstract

This study explored baseline levels of knowledge and attitude toward genetic testing (GT) for hereditary breast and ovarian cancer among Puerto Rican women. A secondary aim was to evaluate whether these factors differed between respondents in Puerto Rico and Tampa. Puerto Rican women with a personal or family history of breast or ovarian cancer who live in Puerto Rico (n = 25) and Tampa (n = 20) were interviewed. Both groups were interested in obtaining GT; women living in Puerto Rico were more likely to report they would get GT within 6 months (p = 0.005). The most commonly cited barrier was cost; the most commonly cited facilitator was provider recommendation. There was no difference in overall knowledge between Tampa (M = 5.15, SD = 1.63) and Puerto Rico (M = 5.00, SD = 1.87) participants (p = 0.78). Involving health care providers in recruitment and highlighting that GT may be available at minimal or no cost in the USA and Puerto Rico may facilitate participation.

Keywords

Genetic counselingGenetic testingHereditary cancerHispanicPuerto Rico

Copyright information

© Springer-Verlag 2011

Authors and Affiliations

  • Susan T. Vadaparampil
    • 1
    • 2
  • Gwendolyn P. Quinn
    • 1
    • 2
  • Julie Dutil
    • 3
  • Marieva Puig
    • 4
  • Teri L. Malo
    • 1
  • Jessica McIntyre
    • 1
  • Rossybelle Perales
    • 1
  • Euna M. August
    • 1
  • Zuheily Closser
    • 1
  1. 1.Health Outcomes and Behavior ProgramMoffitt Cancer CenterTampaUSA
  2. 2.Department of Oncologic Sciences, College of MedicineUniversity of South FloridaTampaUSA
  3. 3.Ponce School of MedicinePoncePuerto Rico
  4. 4.University of Puerto RicoSan JuanPuerto Rico