The Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement
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The prevalence of cancer survivorship in the USA is expected to increase in the future because the US population is increasing in size and is aging and because survival following diagnosis is improving for many types of cancer. Medical care costs associated with cancer are also projected to increase dramatically. However, currently available data for estimating medical care costs and other important aspects of the burden of cancer, including time spent receiving medical care, productivity loss due to morbidity for patients and their families, and financial hardship, are limited, particularly in the population under the age of 65.
We describe selected publicly available data sources for estimating the burden of cancer in the USA and a new collaborative effort to improve the quality of these data: the nationally representative Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement.
Data from this effort can be used to address key gaps in cancer survivorship research related to medical care costs, employment patterns, financial hardship, and other aspects of the burden of illness for cancer survivors and their families.
Implications for cancer survivors
Research using the MEPS Experiences with Cancer Survivorship Supplement can inform efforts by health care policy makers, healthcare systems, providers, and employers to improve the cancer survivorship experience in the USA.
- Howlander, N, Noone, AM, Krapcho, M, Neyman, N, Aminou, R, Waldron, W (2011) SEER cancer statistics review, 1975-2008. National Cancer Institute, Bethesda
- Kohler, BA, Ward, E, McCarthy, BJ, Schymura, MJ, Ries, LAG, Eheman, C (2011) Annual report to the nation on the status of cancer, 1975–2007, featuring tumors of the brain and other nervous system. J Natl Cancer Inst 103: pp. 714-736 CrossRef
- Mariotto, AB, Yabroff, KR, Shao, Y, Feuer, EJ, Brown, ML (2011) Projections of the cost of cancer care in the United States: 2010–2020. J Natl Cancer Inst 103: pp. 117-128 CrossRef
- Berry, DA, Cronin, KA, Plevritis, SK, Fryback, DG, Clarke, L, Zelen, M (2005) Effect of screening and adjuvant therapy on mortality from breast cancer. N Engl J Med 353: pp. 1784-1792 CrossRef
- Dowling, E, Yabroff, KR, Mariotto, AB, McNeel, T, Zeruto, C, Buckman, D (2010) Burden of illness in adult survivors of childhood cancers: findings from a population-based national sample. Cancer 116: pp. 3712-3721 CrossRef
- Yabroff, KR, Lawrence, WF, Clauser, S, Davis, WW, Brown, ML (2004) Burden of illness in cancer survivors: findings from a population-based national sample. J Natl Cancer Inst 96: pp. 1322-1330 CrossRef
- Weaver, KE, Rowland, JH, Bellizzi, KM, Aziz, NM (2010) Forgoing medical care because of cost: assessing disparities in healthcare access among cancer survivors living in the United States. Cancer 116: pp. 3493-3504 CrossRef
- Schwartz K, Claxton G, Martin K, Schmidt C. Spending to survive: cancer patients confront holes in the health insurance system. Kaiser Family Foundation and American Cancer Society; 2009.
- Hewitt, M, Greenfield, S, Stovall, E (2006) From cancer patient to cancer survivor: lost in translation. National Academies Press, Washington, DC
- U.S. Department of Health & Human Services. Affordable Care Act. 2011. http://www.healthcare.gov/. Accessed 4 November 2011.
- Lund, JL, Yabroff, KR, Ibuka, Y, Russell, LB, Barnett, PG, Lipscomb, J (2009) Inventory of data sources for estimating health care costs in the United States. Med Care 47: pp. S127-S142 CrossRef
- Yabroff, KR, Lund, JL, Kepka, D, Mariotto, AB (2011) Economic burden of cancer in the US: estimates, projections, future research. Cancer Epidemiol Biomarkers Prev 20: pp. 2006-2014 CrossRef
- Agency for Healthcare Research and Quality. Healthcare Cost and Utilization Project (HCUP). 2010. http://www.ahrq.gov/data/hcup/. Accessed 4 January 2012.
- Seifeldin, R, Hantsch, JJ (1999) The economic burden associated with colon cancer in the United States. Clin Ther 21: pp. 1370-1379 CrossRef
- Newton, AN, Ewer, SR (2010) Inpatient cancer treatment: an analysis of financial and nonfinancial performance measures by hospital-ownership type. J Health Care Finance 37: pp. 56-80
- Warren, JL, Klabunde, CN, Schrag, D, Bach, PB, Riley, GF (2002) Overview of the SEER-Medicare data: content, research applications, and generalizabilty to the United States elderly population. Med Care 40: pp. IV-3-IV-18
- Hackbarth GM. Medicare Cost-sharing and Supplemental Insurance. Statement before the Subcommittee on Health, Committee on Ways and Means, U.S. House of Representatives. 2003.
- Crystal, S, Johnson, RW, Harman, J, Sambamoorthi, U, Kumar, R (2000) Out-of-pocket health care costs among older Americans. J Gerontol B Psychol Sci Soc Sci 55: pp. S51-S62 CrossRef
- Yabroff, KR, Lamont, EB, Mariotto, A, Warren, JL, Topor, M, Meekins, A (2008) Cost of care for elderly cancer patients in the United States. J Natl Cancer Inst 100: pp. 630-641 CrossRef
- Warren, JL, Yabroff, KR, Meekins, A, Topor, M, Lamont, EB, Brown, ML (2008) Evaluation of trends in the cost of initial cancer treatment. J Natl Cancer Inst 100: pp. 888-897 CrossRef
- Yabroff, KR, Davis, WW, Lamont, EB, Fahey, A, Topor, M, Brown, ML (2007) Patient time costs associated with cancer care. J Natl Cancer Inst 99: pp. 14-23 CrossRef
- Centers for Disease Control and Prevention. National Health Interview Survey. 2011. http://www.cdc.gov/nchs/nhis.htm. Accessed 4 January 2012.
- Hewitt, M, Rowland, JH, Yancik, R (2003) Cancer survivors in the United States: age, health, and disability. J Gerontol A Biol Sci Med Sci 58: pp. 82-91 CrossRef
- Sabatino, SA, Coates, RJ, Uhler, RJ, Alley, LG, Pollack, LA (2006) Health insurance coverage and cost barriers to needed medical care among US adult cancer survivors age <65 years. Cancer 106: pp. 2466-2475 CrossRef
- Cohen, JW, Cohen, SB, Banthin, JS (2009) The medical expenditure panel survey: a national information resource to support healthcare cost research and inform policy and practice. Med Care 47: pp. S44-S50 CrossRef
- Short, PF, Moran, JR, Rajeshwari, P (2011) Medical expenditures of adult cancer survivors aged <65 years in the United States. Cancer 117: pp. 2791-2800 CrossRef
- Howard, DH, Molinari, N-A, Thorpe, KE (2004) National estimates of medical costs incurred by nonelderly cancer patients. Cancer 100: pp. 883-891 CrossRef
- Thorpe KE, Howard D. Health insurance and spending among cancer patients. Health Aff (Millwood). 2003 Apr 9;(Suppl Web Exclusives):W3-189; 198.
- Tangka, FK, Trogdon, JG, Richardson, LC, Howard, D, Sabatino, SA, Finkelstein, EA (2010) Cancer treatment cost in the United States. Cancer 116: pp. 3477-3484 CrossRef
- Finkelstein, EA, Tangka, FK, Trogdon, JG, Sabatino, SA, Richardson, LC (2009) The personal financial burden of cancer for the working age population. Am J Manag Care 15: pp. 801-806
- National Cancer Institute. Medical Expenditure Panel Survey (MEPS): Experiences with Cancer Survivorship Supplement. 2011. http://healthservices.cancer.gov/surveys/meps/. Accessed 4 January 2012.
- Lerro CC, Stein KD, Smith T, Virgo KS. A systematic review of large-scale surveys of cancer survivors conducted in North America, 1990–2011, under review. 2011.
- Willis, G (2005) Cognitive interviewing: a tool for improving questionnaire design. Sage, Thousand Oaks
- Tourangeau R, Rips LJ, Rasinski K. The psychology of survey response. Cambridge: Cambridge University Press; 2000.
- DeNavas-Walt C, Proctor BD, Smith JC. Income, Poverty, and Health Insurance Coverage in the United States: 2008. 2009. http://www.census.gov/prod/2009pubs/p60-236.pdf. Accessed 4 January 2012.
- Smith, TJ, Penberthy, L, Desch, CE (1995) Differences in initial treatment patterns and outcomes of lung cancer in the elderly. Lung Cancer 13: pp. 235-252 CrossRef
- Farrow, DC, Hunt, WC, Samet, JM (1992) Geographic variation in the treatment of localized breast cancer. N Engl J Med 326: pp. 1097-1101 CrossRef
- Satariano, ER, Swanson, GM, Moll, PP (1992) Nonclinical factors associated with surgery received for early stage breast cancer. Am J Public Health 82: pp. 195-198 CrossRef
- Yabroff, KR, Warren, JL, Banthin, J, Schrag, D, Mariotto, A, Lawrence, W (2009) Comparison of approaches for estimating prevalence costs of care for cancer patients: what is the impact of data source?. Med Care 47: pp. S64-S69 CrossRef
- Yabroff, KR, Warren, JL, Schrag, D, Meekins, A, Topor, M, Brown, ML (2009) Comparison of approaches for estimating incidence costs of care for colorectal cancer patients. Med Care 47: pp. S56-S63 CrossRef
- The Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement
Journal of Cancer Survivorship
Volume 6, Issue 4 , pp 407-419
- Cover Date
- Print ISSN
- Online ISSN
- Springer US
- Additional Links
- Cost of illness
- Health care expenditures
- Burden of illness
- Industry Sectors
- Author Affiliations
- 1. Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, USA
- 7. Health Services and Economics Branch/Applied Research Program, National Cancer Institute, Executive Plaza North, Room 4005, 6130 Executive Blvd., MSC 7344, Bethesda, MD, 20892-7344, USA
- 2. Institute for Technology Assessment, Massachusetts General Hospital, Boston, MA, USA
- 3. Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA, USA
- 4. Office of Behavioral and Social Sciences Research, National Institutes of Health, Bethesda, MD, USA
- 5. Center for Financing, Access, and Cost Trends, Agency for Healthcare Research and Quality, Rockville, MD, USA
- 6. Health Services Research Program, Intramural Research Department, American Cancer Society National Home Office, Atlanta, GA, USA