The Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement
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The prevalence of cancer survivorship in the USA is expected to increase in the future because the US population is increasing in size and is aging and because survival following diagnosis is improving for many types of cancer. Medical care costs associated with cancer are also projected to increase dramatically. However, currently available data for estimating medical care costs and other important aspects of the burden of cancer, including time spent receiving medical care, productivity loss due to morbidity for patients and their families, and financial hardship, are limited, particularly in the population under the age of 65.
We describe selected publicly available data sources for estimating the burden of cancer in the USA and a new collaborative effort to improve the quality of these data: the nationally representative Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement.
Data from this effort can be used to address key gaps in cancer survivorship research related to medical care costs, employment patterns, financial hardship, and other aspects of the burden of illness for cancer survivors and their families.
Implications for cancer survivors
Research using the MEPS Experiences with Cancer Survivorship Supplement can inform efforts by health care policy makers, healthcare systems, providers, and employers to improve the cancer survivorship experience in the USA.
- Howlander N, Noone AM, Krapcho M, Neyman N, Aminou R, Waldron W, et al. SEER cancer statistics review, 1975-2008. Bethesda: National Cancer Institute; 2011.
- Kohler BA, Ward E, McCarthy BJ, Schymura MJ, Ries LAG, Eheman C, et al. Annual report to the nation on the status of cancer, 1975–2007, featuring tumors of the brain and other nervous system. J Natl Cancer Inst. 2011;103:714–36. CrossRef
- Mariotto AB, Yabroff KR, Shao Y, Feuer EJ, Brown ML. Projections of the cost of cancer care in the United States: 2010–2020. J Natl Cancer Inst. 2011;103(2):117–28. CrossRef
- Berry DA, Cronin KA, Plevritis SK, Fryback DG, Clarke L, Zelen M, et al. Effect of screening and adjuvant therapy on mortality from breast cancer. N Engl J Med. 2005;353:1784–92. CrossRef
- Dowling E, Yabroff KR, Mariotto AB, McNeel T, Zeruto C, Buckman D. Burden of illness in adult survivors of childhood cancers: findings from a population-based national sample. Cancer. 2010;116(15):3712–21. CrossRef
- Yabroff KR, Lawrence WF, Clauser S, Davis WW, Brown ML. Burden of illness in cancer survivors: findings from a population-based national sample. J Natl Cancer Inst. 2004;96:1322–30. CrossRef
- Weaver KE, Rowland JH, Bellizzi KM, Aziz NM. Forgoing medical care because of cost: assessing disparities in healthcare access among cancer survivors living in the United States. Cancer. 2010;116(14):3493–504. CrossRef
- Schwartz K, Claxton G, Martin K, Schmidt C. Spending to survive: cancer patients confront holes in the health insurance system. Kaiser Family Foundation and American Cancer Society; 2009.
- Hewitt M, Greenfield S, Stovall E. From cancer patient to cancer survivor: lost in translation. Washington, DC: National Academies Press; 2006.
- U.S. Department of Health & Human Services. Affordable Care Act. 2011. http://www.healthcare.gov/. Accessed 4 November 2011.
- Lund JL, Yabroff KR, Ibuka Y, Russell LB, Barnett PG, Lipscomb J, et al. Inventory of data sources for estimating health care costs in the United States. Med Care. 2009;47(7 Suppl 1):S127–42. CrossRef
- Yabroff KR, Lund JL, Kepka D, Mariotto AB. Economic burden of cancer in the US: estimates, projections, future research. Cancer Epidemiol Biomarkers Prev. 2011;20(10):2006–14. CrossRef
- Agency for Healthcare Research and Quality. Healthcare Cost and Utilization Project (HCUP). 2010. http://www.ahrq.gov/data/hcup/. Accessed 4 January 2012.
- Seifeldin R, Hantsch JJ. The economic burden associated with colon cancer in the United States. Clin Ther. 1999;21:1370–9. CrossRef
- Newton AN, Ewer SR. Inpatient cancer treatment: an analysis of financial and nonfinancial performance measures by hospital-ownership type. J Health Care Finance. 2010;37(2):56–80.
- Warren JL, Klabunde CN, Schrag D, Bach PB, Riley GF. Overview of the SEER-Medicare data: content, research applications, and generalizabilty to the United States elderly population. Med Care. 2002;40(8 Suppl):IV-3–IV-18.
- Hackbarth GM. Medicare Cost-sharing and Supplemental Insurance. Statement before the Subcommittee on Health, Committee on Ways and Means, U.S. House of Representatives. 2003.
- Crystal S, Johnson RW, Harman J, Sambamoorthi U, Kumar R. Out-of-pocket health care costs among older Americans. J Gerontol B Psychol Sci Soc Sci. 2000;55:S51–62. CrossRef
- Yabroff KR, Lamont EB, Mariotto A, Warren JL, Topor M, Meekins A, et al. Cost of care for elderly cancer patients in the United States. J Natl Cancer Inst. 2008;100(9):630–41. CrossRef
- Warren JL, Yabroff KR, Meekins A, Topor M, Lamont EB, Brown ML. Evaluation of trends in the cost of initial cancer treatment. J Natl Cancer Inst. 2008;100:888–97. CrossRef
- Yabroff KR, Davis WW, Lamont EB, Fahey A, Topor M, Brown ML, et al. Patient time costs associated with cancer care. J Natl Cancer Inst. 2007;99:14–23. CrossRef
- Centers for Disease Control and Prevention. National Health Interview Survey. 2011. http://www.cdc.gov/nchs/nhis.htm. Accessed 4 January 2012.
- Hewitt M, Rowland JH, Yancik R. Cancer survivors in the United States: age, health, and disability. J Gerontol A Biol Sci Med Sci. 2003;58:82–91. CrossRef
- Sabatino SA, Coates RJ, Uhler RJ, Alley LG, Pollack LA. Health insurance coverage and cost barriers to needed medical care among US adult cancer survivors age <65 years. Cancer. 2006;106(11):2466–75. CrossRef
- Cohen JW, Cohen SB, Banthin JS. The medical expenditure panel survey: a national information resource to support healthcare cost research and inform policy and practice. Med Care. 2009;47(7 Suppl 1):S44–50. CrossRef
- Short PF, Moran JR, Rajeshwari P. Medical expenditures of adult cancer survivors aged <65 years in the United States. Cancer. 2011;117(12):2791–800. CrossRef
- Howard DH, Molinari N-A, Thorpe KE. National estimates of medical costs incurred by nonelderly cancer patients. Cancer. 2004;100:883–91. CrossRef
- Thorpe KE, Howard D. Health insurance and spending among cancer patients. Health Aff (Millwood). 2003 Apr 9;(Suppl Web Exclusives):W3-189; 198.
- Tangka FK, Trogdon JG, Richardson LC, Howard D, Sabatino SA, Finkelstein EA. Cancer treatment cost in the United States. Cancer. 2010;116(14):3477–84. CrossRef
- Finkelstein EA, Tangka FK, Trogdon JG, Sabatino SA, Richardson LC. The personal financial burden of cancer for the working age population. Am J Manag Care. 2009;15(11):801–6.
- National Cancer Institute. Medical Expenditure Panel Survey (MEPS): Experiences with Cancer Survivorship Supplement. 2011. http://healthservices.cancer.gov/surveys/meps/. Accessed 4 January 2012.
- Lerro CC, Stein KD, Smith T, Virgo KS. A systematic review of large-scale surveys of cancer survivors conducted in North America, 1990–2011, under review. 2011.
- Willis G. Cognitive interviewing: a tool for improving questionnaire design. Thousand Oaks: Sage; 2005.
- Tourangeau R, Rips LJ, Rasinski K. The psychology of survey response. Cambridge: Cambridge University Press; 2000.
- DeNavas-Walt C, Proctor BD, Smith JC. Income, Poverty, and Health Insurance Coverage in the United States: 2008. 2009. http://www.census.gov/prod/2009pubs/p60-236.pdf. Accessed 4 January 2012.
- Smith TJ, Penberthy L, Desch CE, et al. Differences in initial treatment patterns and outcomes of lung cancer in the elderly. Lung Cancer. 1995;13:235–52. CrossRef
- Farrow DC, Hunt WC, Samet JM. Geographic variation in the treatment of localized breast cancer. N Engl J Med. 1992;326:1097–101. CrossRef
- Satariano ER, Swanson GM, Moll PP. Nonclinical factors associated with surgery received for early stage breast cancer. Am J Public Health. 1992;82:195–8. CrossRef
- Yabroff KR, Warren JL, Banthin J, Schrag D, Mariotto A, Lawrence W, et al. Comparison of approaches for estimating prevalence costs of care for cancer patients: what is the impact of data source? Med Care. 2009;47(7 Suppl 1):S64–9. CrossRef
- Yabroff KR, Warren JL, Schrag D, Meekins A, Topor M, Brown ML. Comparison of approaches for estimating incidence costs of care for colorectal cancer patients. Med Care. 2009;47(7 Suppl 1):S56–63. CrossRef
- The Medical Expenditure Panel Survey (MEPS) Experiences with Cancer Survivorship Supplement
Journal of Cancer Survivorship
Volume 6, Issue 4 , pp 407-419
- Cover Date
- Print ISSN
- Online ISSN
- Springer US
- Additional Links
- Cost of illness
- Health care expenditures
- Burden of illness
- Industry Sectors
- Author Affiliations
- 1. Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, USA
- 7. Health Services and Economics Branch/Applied Research Program, National Cancer Institute, Executive Plaza North, Room 4005, 6130 Executive Blvd., MSC 7344, Bethesda, MD, 20892-7344, USA
- 2. Institute for Technology Assessment, Massachusetts General Hospital, Boston, MA, USA
- 3. Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention, Atlanta, GA, USA
- 4. Office of Behavioral and Social Sciences Research, National Institutes of Health, Bethesda, MD, USA
- 5. Center for Financing, Access, and Cost Trends, Agency for Healthcare Research and Quality, Rockville, MD, USA
- 6. Health Services Research Program, Intramural Research Department, American Cancer Society National Home Office, Atlanta, GA, USA