Journal of Bioethical Inquiry

, Volume 4, Issue 2, pp 135–150

Donor Perspectives on Issues Associated with Donation of Genetic Samples and Information: An Australian Viewpoint

Article

DOI: 10.1007/s11673-007-9055-4

Cite this article as:
Otlowski, M. Bioethical Inquiry (2007) 4: 135. doi:10.1007/s11673-007-9055-4

Abstract

This paper provides a legal overview of key issues associated with donation of genetic samples and information from a donor perspective. In particular, it addresses the property status of samples as well as issues in respect of consent, privacy, commercialisation and benefit sharing. The paper highlights the need for appropriate protection and safeguards for individuals, but also, importantly, for understanding what donors actually think and want in terms of genetic research and the use of their samples and information. The paper seeks to emphasise the importance of transparency and accountability in the conduct of research in order to maximise donor participation and confidence and public trust in general.

Keywords

Tissue and organ procurementGenetic researchTissue banksTrustPublic policy

Copyright information

© Springer Science + Business Media B.V. 2007

Authors and Affiliations

  1. 1.Centre for Law and Genetics, Faculty of LawUniversity of TasmaniaHobartAustralia