Crowdsourcing—Harnessing the Masses to Advance Health and Medicine, a Systematic Review
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Crowdsourcing research allows investigators to engage thousands of people to provide either data or data analysis. However, prior work has not documented the use of crowdsourcing in health and medical research. We sought to systematically review the literature to describe the scope of crowdsourcing in health research and to create a taxonomy to characterize past uses of this methodology for health and medical research.
PubMed, Embase, and CINAHL through March 2013.
Study eligibility criteria
Primary peer-reviewed literature that used crowdsourcing for health research.
Study appraisal and synthesis methods
Two authors independently screened studies and abstracted data, including demographics of the crowd engaged and approaches to crowdsourcing.
Twenty-one health-related studies utilizing crowdsourcing met eligibility criteria. Four distinct types of crowdsourcing tasks were identified: problem solving, data processing, surveillance/monitoring, and surveying. These studies collectively engaged a crowd of >136,395 people, yet few studies reported demographics of the crowd. Only one (5 %) reported age, sex, and race statistics, and seven (33 %) reported at least one of these descriptors. Most reports included data on crowdsourcing logistics such as the length of crowdsourcing (n = 18, 86 %) and time to complete crowdsourcing task (n = 15, 71 %). All articles (n = 21, 100 %) reported employing some method for validating or improving the quality of data reported from the crowd.
Gray literature not searched and only a sample of online survey articles included.
Conclusions and implications of key findings
Utilizing crowdsourcing can improve the quality, cost, and speed of a research project while engaging large segments of the public and creating novel science. Standardized guidelines are needed on crowdsourcing metrics that should be collected and reported to provide clarity and comparability in methods.
- Crowdsourcing—Harnessing the Masses to Advance Health and Medicine, a Systematic Review
Journal of General Internal Medicine
Volume 29, Issue 1 , pp 187-203
- Cover Date
- Print ISSN
- Online ISSN
- Springer US
- Additional Links
- crowd sourcing
- citizen scientist
- citizen science
- human computing
- Industry Sectors
- Author Affiliations
- 1. Perelman School of Medicine, University of Pennsylvania, 423 Guardian Drive, Blockley Hall, Philadelphia, PA, 19104, USA
- 3. The Leonard Davis Institute of Health Economics, University of Pennsylvania, Philadelphia, PA, USA
- 4. Department of Emergency Medicine, University of Pennsylvania, Philadelphia, PA, USA
- 2. Penn Medicine Center for Innovation, University of Pennsylvania, Philadelphia, PA, USA
- 5. Philadelphia Veterans Affairs Medical Center, Philadelphia, PA, USA
- 6. The Wharton School, University of Pennsylvania, Philadelphia, PA, USA
- 7. University of Pennsylvania Libraries, University of Pennsylvania, Philadelphia, PA, USA