Adults with Autism—A New Minority
- David S. Mandell ScD
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While autism is generally considered a disorder of childhood, its dramatically increasing prevalence,1 combined with the lack of known treatment that completely ameliorates associated disabilities,2 means that autism is rapidly becoming a disorder of adulthood as well. People with autism will spend the majority of their lives—and receive the overwhelming bulk of their health care—as adults.3
Research on healthcare experiences of individuals with autism has been almost uniformly limited to studies of children and their families, who consistently report more difficulty obtaining health care for their children and less satisfaction with that care, once received.4 In recognition of the critical dearth of research regarding adults with autism, the Interagency Autism Coordinating Council, the body charged with advising the Secretary of Health and Human Services on autism research, policy and practice, devoted an entire chapter of its seven-chapter strategic plan to the needs of adults.5 That ...
- Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators. Prevalence of autism spectrum disorders—Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR Surveill Summ. 2012;61(3):1–19.
- Warren Z, McPheeters M, Sathe N, Foss-Feig J, Glasser A, Veenstra-Vanderweele J. A systematic review of early intensive intervention for autism spectrum disorders. Pediatrics. 2011;127(5):e1303–11. CrossRef
- Ganz M. The lifetime distribution of the incremental societal costs of autism. Arch Pediatr Adolesc Med. 2007;161(4):343–9. CrossRef
- Kogan M, Strickland B, Blumberg S, Singh G, Perrin J, van Dyck P. A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics. 2008;122(6):e1149–58. CrossRef
- Committee IAC. 2011 Interagency Autism Coordinating Committee Strategic Plan for Autism Spectrum Disorder Research. 2011; http://iacc.hhs.gov/strategic-plan/2011/index.shtml. Accessed March, 2013.
- National Collaborating Centre for Mental Health. Autism: recognition, Referral, Diagnosis and Management of Adults on the Autism Spectrum—Draft 2011. London: National Institute for Health and Clinical Excellence; 2011.
- Nicolaidis C, Raymaker D, McDonald K, et al. Comparison of healthcare experiences in autistic and non-autistic adults: a cross-sectional online survey facilitated by an academic–community partnership. J Gen Intern Med. 2013. doi:10.1007/s11606-012-2262-7.
- Shavelle R, Strauss D, Pickett J. Causes of death in autism. J Autism Dev Disord. 2001;31(6):569–76. CrossRef
- Adults with Autism—A New Minority
Journal of General Internal Medicine
Volume 28, Issue 6 , pp 751-752
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- 1. Center for Mental Health Policy and Services Research, University of Pennsylvania Perelman School of Medicine, 3535 Market St, 3rd Floor, Philadelphia, PA, 19104, USA