Original Research

Journal of General Internal Medicine

, Volume 27, Issue 1, pp 37-44

Difficulty Assisting with Health Care Tasks Among Caregivers of Multimorbid Older Adults

  • Erin R. GiovannettiAffiliated withDivision of Geriatrics, Johns Hopkins School of MedicineJohns Hopkins University School of Medicine Email author 
  • , Jennifer L. WolffAffiliated withDivision of Geriatrics, Johns Hopkins School of MedicineDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
  • , Qian-Li XueAffiliated withDivision of Geriatrics, Johns Hopkins School of MedicineDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
  • , Carlos O. WeissAffiliated withDivision of Geriatrics, Johns Hopkins School of Medicine
  • , Bruce LeffAffiliated withDivision of Geriatrics, Johns Hopkins School of MedicineDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
  • , Chad BoultAffiliated withDivision of Geriatrics, Johns Hopkins School of MedicineDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health
  • , Travonia HughesAffiliated withDivision of Geriatrics, Johns Hopkins School of Medicine
  • , Cynthia M. BoydAffiliated withDivision of Geriatrics, Johns Hopkins School of MedicineDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health

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Abstract

BACKGROUND

Family caregivers provide assistance with health care tasks for many older adults with chronic illnesses. The difficulty they experience in providing this assistance, and related implications for their well-being, have not been well described.

OBJECTIVE

The objectives of this study are: (1) to describe caregiver’s health care task difficulty (HCTD), (2) determine the characteristics associated with HCTD, and (3) explore the association between HCTD and caregiver well-being.

DESIGN

This is a cross-sectional study.

PARTICIPANTS

Baseline sample of caregivers to older (aged 65+ years) multimorbid adults enrolled in an ongoing cluster-randomized controlled trial (N = 308).

MAIN MEASURES

The HCTD scale (0–16) is comprised of questions measuring self-reported difficulty in assisting older adults with eight health care tasks, including taking medication, visiting health care providers, and managing medical bills. Caregivers were categorized using this scale into no, low, medium, and high HCTD groups. We used ordinal logistic regression and multivariate linear regression analyses to examine the relationships between HCTD, caregiver self-efficacy, caregiver strain (Caregiver Strain Index), and depression (Center for Epidemiological Studies Depression Scale), controlling for patient and caregiver socio-demographic and health factors.

KEY RESULTS

Caregiver age and number of health care tasks performed were positively associated with increased HCTD. The quality of the caregiver’s relationship with the patient, and self-efficacy were inversely associated with increased HCTD. A one-point increase in self-efficacy was associated with a significant lower odds of reporting high HCTD (OR, 0.64; 95% CI, 0.54, 0.77).Adjusted linear regression models indicated that high HCTD was independently associated with significantly greater caregiver strain (B, 2.7; 95% CI, 1.12, 4.29) and depression (B, 3.01; 95% CI, 1.06, 4.96).

CONCLUSIONS

This study demonstrates that greater HCTD is associated with increased strain and depression among caregivers of multimorbid older adults. That caregiver self-efficacy was strongly associated with HCTD suggests health-system-based educational and empowering interventions might improve caregiver well-being.

KEY WORDS

caregiver chronic disease self efficacy psychology