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Quality of life of leprosy sequelae patients living in a former leprosarium under home care: univariate analysis

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Abstract

Introduction

Quality of life (QoL) is a broad concept that has become more important during the last decades. Despite this fact, few studies have been conducted to evaluate leprosy patients, none of which has specifically addressed patients with leprosy sequels submitted to home care.

Purpose

To evaluate the QoL of leprosy sequel bearers and the factors that may affect their perception of their condition.

Methods

WHOQoL-BREF, a questionnaire developed by the World Health Organization, was administered to 32 people living in the coverage area of a former leprosarium. Patient socio-demographic and care-related caregiver data were collected. Activities of daily living and Instrumental Activities of Daily Living Scales were used to evaluate autonomy. Mini-Mental Status Examination was used to evaluate cognitive status. Simple linear regression analyses were conducted using SPSS Statistical Software and the non-standardized beta values were presented.

Results

The patients were mainly female, widowed, elderly, with bone sequels; all had impairment of at least one Instrumental Daily Living Activity. QoL scores were 12.35 in a 4–20 scale (52.18 %) in the physical domain, 12.95 (55.94 %) in the psychological health domain, 13.18 (57.40 %) in the environment domain, and 16.09 (75.56 %) in the social domain. Univariate analysis suggests that instrumental daily activity “capacity of shopping,” marital status, and caregiver age were associated with self-perceived QoL. Data were also compared to those from other studies.

Conclusion

Individuals affected by leprosy had low QoL scores in the physical and psychological health domains and high scores in the social domain. The factors that impact their QoL seem to be related to specific conditions found in the leprosarium and the previous isolation practices.

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Ethical standards

This study was approved by the Brazilian Ethics and Research Committee (CONEP), protocol number CAAE—0022.0.245.000-08.

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Authors and Affiliations

  1. Universidade Federal de Ouro Preto (UFOP), Ouro Preto, Brazil

    Leonardo Cançado Monteiro Savassi

  2. Rene Rachou Research Centre (CPqRR/FIOCRUZ), Belo Horizonte, Brazil

    Leonardo Cançado Monteiro Savassi, Anna Carolina Lustosa Lima & Celina Maria Modena

  3. Home Care Service, Santa Izabel Health House (CSSI/FHEMIG), Betim, Brazil

    Tatiana Roberta Sarubi Bogutchi

  4. Universidade Federal de Minas Gerais (UFMG), Belo Horizonte, Brazil

    Celina Maria Modena

  5. Laboratorio de Educacao em Saude, CPqRR/FIOCRUZ Minas, Av. Augusto de Lima, 1715–Sala: 206, Barro Preto, Belo Horizonte, MG, 30190-002, Brazil

    Leonardo Cançado Monteiro Savassi

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  1. Leonardo Cançado Monteiro Savassi
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  2. Tatiana Roberta Sarubi Bogutchi
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Correspondence to Leonardo Cançado Monteiro Savassi.

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Savassi, L.C.M., Bogutchi, T.R.S., Lima, A.C.L. et al. Quality of life of leprosy sequelae patients living in a former leprosarium under home care: univariate analysis. Qual Life Res 23, 1345–1351 (2014). https://doi.org/10.1007/s11136-013-0590-7

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