Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions: the case of congenital heart disease
Purchase on Springer.com
$39.95 / €34.95 / £29.95*
Rent the article at a discountRent now
* Final gross prices may vary according to local VAT.
Individuals with serious medical conditions can perceive their health status as good. This might be explained by the symptomatology inherent to the condition. Research in this respect is scarce. Congenital heart disease (CHD) is a spectrum of mild, moderate, and complex heart defects, representing more benign and severe chronic conditions. We investigated (1) symptomatology (i.e., symptom frequency and symptom distress) of CHD patients; (2) the extent to which symptomatology was independently related to perceived health; and (3) the relative importance of individual symptoms for perceived health.
A secondary data analysis on two separate patient samples (629 Belgian and 1,109 Dutch patients) was conducted. Patients’ symptomatology was measured with the TAAQOL–CHD. Perceived health was measured by the EQ-5Dvas in Belgian patients, and by a single item (EVGFP rating) of the SF-36 in Dutch patients. Linear regression analyses were performed to investigate the relationship between symptoms and perceived health, while controlling for sex, age, disease complexity, and functional status.
The most frequently occurring symptoms were dizziness, palpitations, and nycturia. Symptom distress was associated with perceived health, independent of confounders. Symptom distress with respect to shortness of breath while walking; palpitations; and dizziness were independently related to perceived health.
Perceived health in CHD patients is partially associated with their symptomatology. This finding underscores the possibility that differences in perceived health across patient groups with more benign and severe conditions may be caused by the different impact conditions have—in terms of symptoms—on the day-to-day life.
- OECD. (2007). OECD health data 2007: Statistics and indicators for 30 countries. Paris.
- Jylha, M. (2009). What is self-rated health and why does it predict mortality? Towards a unified conceptual model. Social Science Medicine, 69(3), 307–316. CrossRef
- Farkas, J., Nabb, S., Zaletel-Kragelj, L., Cleland, J. G., & Lainscak, M. (2009). Self-rated health and mortality in patients with chronic heart failure. European Journal of Heart Failure, 11(5), 518–524. CrossRef
- Benyamini, Y., & Idler, E. L. (1999). Community studies reporting association between self-rated health and mortality—Additional studies, 1995 to 1998. Research on Aging, 21(3), 392–401. CrossRef
- Mathews, W. C., & May, S. (2007). EuroQol (EQ-5D) measure of quality of life predicts mortality, emergency department utilization, and hospital discharge rates in HIV-infected adults under care. Health and Quality of Life Outcomes, 5, 5. doi:10.1186/1477-7525-5-5. CrossRef
- Moons, P., De Bleser, L., Budts, W., Sluysmans, T., De Wolf, D., Massin, M., et al. (2004). Health status, functional abilities, and quality of life after the Mustard or Senning operation. Annals of Thoracic Surgery, 77(4), 1359–1365. CrossRef
- Berghammer, M., Karlsson, J., Ekman, I., Eriksson, P., & Dellborg, M. (2011). Self-reported health status (EQ-5D) in adults with congenital heart disease. International Journal of Cardiology. doi:10.1016/j.ijcard.2011.10.002.
- Overgaard, D., Schrader, A. M., Lisby, K. H., King, C., Christensen, R. F., Jensen, H. F., et al. (2011). Patient-reported outcomes in adult survivors with single-ventricle physiology. Cardiology, 120(1), 36–42. CrossRef
- King, J. T., Jr, Tsevat, J., & Roberts, M. S. (2009). Measuring preference-based quality of life using the EuroQol EQ-5D in patients with cerebral aneurysms. Neurosurgery, 65(3), 565–572. CrossRef
- Tarride, J. E., Blackhouse, G., De Rose, G., Bowen, J. M., Nakhai-Pour, H. R., O’Reilly, D., et al. (2011). Should endovascular repair be reimbursed for low risk abdominal aortic aneurysm patients? Evidence from Ontario, Canada. International Journal of Vascular Medicine. doi:10.1155/2011/308685.
- Pare, P., Gray, J., Lam, S., Balshaw, R., Khorasheh, S., Barbeau, M., et al. (2006). Health-related quality of life, work productivity, and health care resource utilization of subjects with irritable bowel syndrome: baseline results from LOGIC (Longitudinal Outcomes Study of Gastrointestinal Symptoms in Canada), a naturalistic study. Clinical Therapeutics, 28(10), 1726–1735. CrossRef
- Augustin, M., Kruger, K., Radtke, M. A., Schwippl, I., & Reich, K. (2008). Disease severity, quality of life and health care in plaque-type psoriasis: a multicenter cross-sectional study in Germany. Dermatology, 216(4), 366–372. CrossRef
- Szende, A., Svensson, K., Stahl, E., Meszaros, A., & Berta, G. Y. (2004). Psychometric and utility-based measures of health status of asthmatic patients with different disease control level. Pharmacoeconomics, 22(8), 537–547. CrossRef
- Moons, P., Van Deyk, K., De Geest, S., Gewillig, M., & Budts, W. (2005). Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart, 91(9), 1193–1198. CrossRef
- Moons, P., Van Deyk, K., De Bleser, L., Marquet, K., Raes, E., De Geest, S., et al. (2006). Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. European Journal of Cardiovascular Prevention and Rehabilitation, 13(3), 407–413. CrossRef
- Riley, J. P., Habibi, H., Banya, W., Gatzoulis, M. A., Lau-Walker, M., & Cowie, M. R. (2011). Education and support needs of the older adult with congenital heart disease. Journal of Advanced Nursing, 68(5), 1050–1060. CrossRef
- van der Velde, E. T., Vriend, J. W., Mannens, M. M., Uiterwaal, C. S., Brand, R., & Mulder, B. J. (2005). CONCOR, an initiative towards a national registry and DNA-bank of patients with congenital heart disease in the Netherlands: Rationale, design, and first results. European Journal of Epidemiology, 20(6), 549–557. CrossRef
- Warnes, C. A., Liberthson, R., Danielson, G. K., Dore, A., Harris, L., Hoffman, J. I., et al. (2001). Task force 1: The changing profile of congenital heart disease in adult life. Journal of the American College of Cardiology, 37(5), 1170–1175. CrossRef
- Schoormans, D., Mager, Y. L., Oort, F. J., Sprangers, M. A., & Mulder, B. J. (2012). New York Heart Association class assessment by cardiologists and outpatients with congenital cardiac disease: A head-to-head comparison of three patient-based versions. Cardiology in the Young, 22(1), 26–33. CrossRef
- Kamphuis, M., Zwinderman, K. H., Vogels, T., Vliegen, H. W., Kamphuis, R. P., Ottenkamp, J., et al. (2004). A cardiac-specific health-related quality of life module for young adults with congenital heart disease: Development and validation. Quality of Life Research, 13(4), 735–745. CrossRef
- Ware, J. E., Jr, & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30(6), 473–483. CrossRef
- Moons, P., De Geest, S., Abraham, I., Cleemput, J. V., & Van Vanhaecke, J. (1998). Symptom experience associated with maintenance immunosuppression after heart transplantation: Patients’ appraisal of side effects. Heart and Lung, 27(5), 315–325. CrossRef
- Larsen, J., Nordstrom, G., Bjorkstrand, B., Ljungman, P., & Gardulf, A. (2003). Symptom distress, functional status and health-related quality of life before high-dose chemotherapy with stem-cell transplantation. European Journal of Cancer Care (England), 12(1), 71–80. CrossRef
- Anderson, R. B., & Testa, M. A. (1994). Symptom distress checklists as a component of quality of life measurement: Comparing prompted reports by patient and physician with concurrent adverse event reports via the physician. Drug information journal, 28(1), 89–114.
- Simko, L. C., & McGinnis, K. A. (2003). Quality of life experienced by adults with congenital heart disease. AACN Clin Issues, 14(1), 42–53. CrossRef
- Kovacs, A. H., Saidi, A. S., Kuhl, E. A., Sears, S. F., Silversides, C., Harrison, J. L., et al. (2009). Depression and anxiety in adult congenital heart disease: predictors and prevalence. International Journal of Cardiology, 137(2), 158–164. CrossRef
- Schoormans, D., Mulder, B. J., van Melle, J. P., Pieper, E. G., van Dijk, A. P., Sieswerda, G. J., et al. (2012). Patients with a congenital heart defect and Type D personality feel functionally more impaired, report a poorer health status and quality of life, but use less healthcare. European Journal of Cardiovascular Nursing. doi:10.1177/1474515112437828.
- Howren, M. B., & Suls, J. (2011). The symptom perception hypothesis revised: Depression and anxiety play different roles in concurrent and retrospective physical symptom reporting. Journal of Personality and Social Psychology, 100(1), 182–195. CrossRef
- Petersen, S., van den Berg, R. A., Janssens, T., & Van den Bergh, O. (2011). Illness and symptom perception: a theoretical approach towards an integrative measurement model. Clinical Psychology Review, 31(3), 428–439. CrossRef
- Williams, L., O’Connor, R. C., Grubb, N. R., & O’Carroll, R. E. (2011). Type D personality and illness perceptions in myocardial infarction patients. Journal of Psychosomatic Research, 70(2), 141–144. CrossRef
- Perceived health is partially associated with the symptomatological profile in patients with benign and severe conditions: the case of congenital heart disease
Quality of Life Research
Volume 22, Issue 6 , pp 1295-1304
- Cover Date
- Print ISSN
- Online ISSN
- Springer Netherlands
- Additional Links
- Perceived health status
- Symptom frequency
- Symptom distress
- Congenital heart disease
- Industry Sectors
- Author Affiliations
- 1. Department of Cardiology, Academic Medical Center, Meibergdreef, 15 1105 AZ, Amsterdam, The Netherlands
- 2. Department of Medical Psychology, Academic Medical Center, Amsterdam, The Netherlands
- 3. Interuniversity Cardiology Institute of the Netherlands, Utrecht, The Netherlands
- 4. Division of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium
- 5. Center for Health Services and Nursing Research, Catholic University of Leuven, Leuven, Belgium
- 6. The Heart Centre, Copenhagen University Hospitals, Copenhagen, Denmark