Quality of Life Research

, Volume 21, Issue 9, pp 1665–1670

Validation of a quality-of-life scale for women with bladder pain syndrome/interstitial cystitis

  • Laura M. Bogart
  • Marika J. Suttorp
  • Marc N. Elliott
  • J. Quentin Clemens
  • Sandra H. Berry
Article

DOI: 10.1007/s11136-011-0085-3

Cite this article as:
Bogart, L.M., Suttorp, M.J., Elliott, M.N. et al. Qual Life Res (2012) 21: 1665. doi:10.1007/s11136-011-0085-3

Abstract

Purpose

To validate a disease-specific scale to measure the impact of symptoms of bladder pain syndrome/interstitial cystitis (BPS/IC), a condition that affects up to 6.5% of US women.

Methods

Participants were drawn from the RAND Interstitial Cystitis Epidemiology (RICE) Study, a telephone probability survey of 146,231 US households. Women who met RICE BPS/IC symptom criteria (n = 3,397) completed the 6-item RAND Bladder Symptom Impact scale (RICE BSI-6). The RICE BSI-6 was adapted from a scale used to assess the impact of diabetes on life and sexuality and modified based on expert input on face validity and focus group work; items specific to diabetic symptoms were eliminated. Validated scales of symptom severity, mental- and physical-health-related quality of life (QoL), depression, coping, and perceived control were used to assess convergent validity.

Results

The RICE BSI-6 (α = 0.92) was significantly related to greater symptom severity, worse general mental- and physical-health-related QoL, more severe depression symptoms, and lower perceived control over life in general and over BPS/IC symptoms (P values < .05). It was also associated with less use of distancing coping (P < .05).

Conclusion

The RICE BSI-6 shows excellent internal consistency and strong convergent validity. It can be used to examine the effects of psychosocial and treatment interventions on QoL among women with BPS/IC.

Keywords

Painful bladder syndrome Interstitial cystitis Quality of life Women 

Abbreviations

BPS/IC

Bladder pain syndrome/interstitial cystitis

RICE

RAND Interstitial Cystitis Epidemiology Study

RICE BSI-6

RICE Bladder Symptom Impact Scale (6 items)

PDMQ

Perceptions of Diabetes Mellitus Questionnaire

PHQ-8

Patient Health Questionnaire (8 items)

QoL

Quality of life

Copyright information

© Springer Science+Business Media B.V. 2011

Authors and Affiliations

  • Laura M. Bogart
    • 1
  • Marika J. Suttorp
    • 2
  • Marc N. Elliott
    • 2
  • J. Quentin Clemens
    • 3
  • Sandra H. Berry
    • 2
  1. 1.Division of General PediatricsChildren’s Hospital Boston, Harvard Medical SchoolBostonUSA
  2. 2.RAND CorporationSanta MonicaUSA
  3. 3.Department of UrologyUniversity of Michigan Medical CenterAnn ArborUSA