Quality of life of community-residing persons with dementia based on self-rated and caregiver-rated measures
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- Black, B.S., Johnston, D., Morrison, A. et al. Qual Life Res (2012) 21: 1379. doi:10.1007/s11136-011-0044-z
To identify correlates of self-rated and caregiver-rated quality of life (QOL) in community-residing persons with dementia (PWD) for intervention development.
Cross-sectional data of 254 PWD and their caregivers participating in a clinical trial were derived from in-home assessments. Self-rated QOL was measured with the Quality of Life-Alzheimer Disease (QOL-AD) scale, and caregiver-rated QOL was measured using the QOL-AD and Alzheimer Disease-Related Quality of Life (ADRQL) scales. Multivariate modeling identified correlates of the PWD’ QOL.
Self-rated QOL was related significantly to participant race, unmet needs, depression, and total medications. Caregiver-rated QOL-AD scores were significantly associated with participant function, unmet needs, depression, and health problems and with caregiver burden and self-rated health. Significant correlates of ADRQL scores included neuropsychiatric symptom severity, functional and cognitive impairment, and caregiver burden and depression.
Correlates of QOL in community-residing PWD depend on who rates the PWD’s QOL and which measure is used. Addressing health problems, medication use, and dementia-related unmet needs, reducing functional dependency, and treating neuropsychiatric symptoms in PWD, while reducing caregiver burden and depression, may maximize QOL in those with dementia.
KeywordsDementiaQuality of lifeCommunity-based participatory researchCaregiversHealth services needs and demands
Activities of daily living
Alzheimer Disease-Related Quality of Life
Caregiver Activity Survey
Cornell Scale for Depression in Dementia
Dementia Care Needs Assessment
Diagnostic and Statistical Manual Fourth Edition Text Revision
Geriatric Depression Scale
Instrumental activities of daily living
Informant Questionnaire for Cognitive Disorders in the Elderly
Mild cognitive impairment
- MIND at Home
Maximizing Independence at Home
Mini Mental State Examination
Not otherwise specified
Psychogeriatric Dependency Rating Scale
Persons with dementia
Quality of life
Quality of Life-Alzheimer Disease
Quality of Life-Alzheimer Disease_Caregiver-Rated
Quality of Life-Alzheimer Disease_Self-Rated
Short Form 12 Items
Telephone Interview for Cognitive Status
Zarit Burden Inventory