The development of a clinical outcomes survey research application: Assessment CenterSM
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- Gershon, R., Rothrock, N.E., Hanrahan, R.T. et al. Qual Life Res (2010) 19: 677. doi:10.1007/s11136-010-9634-4
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The National Institutes of Health sponsored Patient-Reported Outcome Measurement Information System (PROMIS) aimed to create item banks and computerized adaptive tests (CATs) across multiple domains for individuals with a range of chronic diseases.
Web-based software was created to enable a researcher to create study-specific Websites that could administer PROMIS CATs and other instruments to research participants or clinical samples. This paper outlines the process used to develop a user-friendly, free, Web-based resource (Assessment CenterSM) for storage, retrieval, organization, sharing, and administration of patient-reported outcomes (PRO) instruments.
Joint Application Design (JAD) sessions were conducted with representatives from numerous institutions in order to supply a general wish list of features. Use Cases were then written to ensure that end user expectations matched programmer specifications. Program development included daily programmer “scrum” sessions, weekly Usability Acceptability Testing (UAT) and continuous Quality Assurance (QA) activities pre- and post-release.
Assessment Center includes features that promote instrument development including item histories, data management, and storage of statistical analysis results.
This case study of software development highlights the collection and incorporation of user input throughout the development process. Potential future applications of Assessment Center in clinical research are discussed.
KeywordsSoftwareSoftware designOutcome assessment (health care)PsychometricsQuality of lifeHealth surveysQuestionnaires
Computerized adaptive test
Critical to quality
Item response theory
Joint application design
National Institutes of Health
National Institutes of Neurological Disorders and Stroke
Patient-reported outcome measurement information system
Primary research sites
Statistical coordinating center
Usability acceptability testing