Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey
Rent the article at a discountRent now
* Final gross prices may vary according to local VAT.Get Access
This paper describes a large-scale administration of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric items to evaluate measurement characteristics.
Each child completed one of seven test forms containing items from a pool of 293 PROMIS items and four legacy scales. PROMIS items covered six domains (physical function, emotional distress, social role relationship, fatigue, pain, and asthma).
From January 2007 to May 2008, 4,129 children aged 8–17 were enrolled. The sample was 51% female, 55% aged 8–12, 42% minority race and 17% were Hispanic ethnicity. Approximately, 35% of the children participating in the survey consulted a clinician for a chronic illness diagnosis or treatment within 6 months prior to study enrollment.
The final PROMIS pediatric item banks include physical function (n = 52 items), emotional distress (n = 35 items), social role relationships (n = 15 items), fatigue (n = 34 items), pain (n = 13 items), and asthma (n = 17 items). The initial calibration data were provided by a diverse set of children with varying health states (e.g., children with a variety of common chronic illnesses) and racial/ethnic backgrounds.
- Ader, D. N. (2007). Developing the Patient-Reported Outcomes Measurement Information System (PROMIS). Medical Care, 45(Suppl 1), S1–S2. CrossRef
- Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., et al. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH roadmap cooperative group during its first two years. Medical Care, 45(Suppl 1), S3–S11. CrossRef
- Chan, K. S., Mangione-Smith, R., Burwinkle, T. M., Rosen, M., & Varni, J. W. (2005). The PedsQL™: Reliability and validity of the short-form generic core scales and asthma module. Medical Care, 43, 256–265. CrossRef
- Guyatt, G. H., Juniper, E. F., Griffith, L. E., Feeny, D. H., & Ferrie, P. J. (1997). Children and adult perceptions of childhood asthma. Pediatrics, 99(2), 165–168. CrossRef
- Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in children with asthma. Quality of Life Research, 5(1), 35–46. CrossRef
- DeWalt, D., Rothrock, N., Yount, S., & Stone, A. A. (2007). PROMIS cooperative group: Evaluation of item candidates: The PROMIS qualitative item review. Medical Care, 45(Suppl 1), S12–S21. CrossRef
- Walsh, T. R., Irwin, D. E., Meier, A., Varni, J. W., & DeWalt, D. (2008). The use of focus groups in the development of the PROMIS Pediatric Item Bank. Quality of Life Research, 17, 725–735. CrossRef
- Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) Study. Health and Quality of Life Outcomes, 7(3), 1–10.
- Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL™: Measurement model for the pediatric quality of life inventory. Medical Care, 37, 126–139. CrossRef
- Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Duer, W., et al. (2005). KIDSCREEN-52 quality of life measure for children and adolescents. Expert Review of Pharmacoeconomics and Outcomes Research, 2005(5), 353–364.
- European DISABKIDS Group. (2006). The DISABKIDS questionnaires: Quality of life questionnaires for children with chronic conditions. Berlin: Pabst Science Publishers.
- www.pedsql.org. Accessed 10 June 2009.
- kidscreen.diehauptstadt.de. Accessed 10 June 2009.
- Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL™ 4.0. Reliability and validity of the pediatric quality of life inventory™ version 4.0 generic core scales in healthy and patient populations. Medical Care, 39, 800–812. CrossRef
- Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5, 43. CrossRef
- Varni, J. W., Burwinkle, T. M., Rapoff, M. A., Kamps, J. L., & Olson, N. (2004). The PedsQL in pediatric asthma: Reliability and validity of the pediatric quality of life inventory generic core scales and asthma module. Journal of Behavioral Medicine, 27, 297–318. CrossRef
- Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey
Quality of Life Research
Volume 19, Issue 4 , pp 585-594
- Cover Date
- Print ISSN
- Online ISSN
- Springer Netherlands
- Additional Links
- Scale development
- Industry Sectors
- Author Affiliations
- 1. Department of Epidemiology, University of North Carolina at Chapel Hill, CB #7294, Chapel Hill, NC, 27599, USA
- 2. Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
- 3. Department of Pediatrics, Division of Rheumatology, Cincinnati Children’s Hospital and Medical Center, Cincinnati, OH, USA
- 4. Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
- 5. Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, TX, USA
- 6. Division of General Medicine and Clinical Epidemiology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
- 7. Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA