Quality of Life Research

, Volume 18, Issue 1, pp 125–136

Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples

Authors

    • Dept of Psychosomatic MedicineUniversity Clinic Eppendorf
    • QualityMetric
  • Andrea Bezjak
    • Dept of Radiation Oncology, Princess Margaret Hospital, University Health NetworkUniversity of Toronto
Article

DOI: 10.1007/s11136-008-9436-0

Cite this article as:
Rose, M. & Bezjak, A. Qual Life Res (2009) 18: 125. doi:10.1007/s11136-008-9436-0

Abstract

Purpose

Interest in collecting patient-reported outcomes (PROs), such as health-related quality of life (HRQOL), health status reports, and patient satisfaction is on the rise and practical aspects of collecting PROs in clinical practice are becoming more important. The purpose of this paper is to draw the attention to a number of issues relevant for a successful integration of PRO measures into the daily work flow of busy clinical settings.

Methods

The paper summarizes the results from a breakout session held at an ISOQOL special topic conference for PRO measures in clinical practice in 2007.

Results

Different methodologies of collecting PROs are discussed, and the support needed for each methodology is highlighted. The discussion is illustrated by practical real-life examples from early adaptors who administered paper–pencil, or electronic PRO assessments (ePRO) for more than a decade. The paper also reports about new experiences with more recent technological developments, such as SmartPens and Computer Adaptive Tests (CATs) in daily practice.

Conclusions

Methodological and logistical issues determine the resources needed for a successful integration of PRO measures into daily work flow procedures and influence significantly the usefulness of PRO data for clinical practice.

Keywords

Patient-reported outcomesClinical practiceePRO assessmentsHealth-related quality of life

Copyright information

© Springer Science+Business Media B.V. 2009