Article

Quality of Life Research

, Volume 15, Issue 9, pp 1481-1492

Quality of Life and Continence in Patients with Spina Bifida

  • J.L. LemelleAffiliated withService de Chirurgie Infantile, Hôpital d’Enfants, CHU de NancyEA 3444 – Service d’Epidémiologie et Evaluations cliniques, Hôpital Marin – CHU de NancyDepartment of Paediatric Surgery, Children’s Hospital, Nancy University School of Medicine Email author 
  • , F. GuilleminAffiliated withEA 3444 – Service d’Epidémiologie et Evaluations cliniques, Hôpital Marin – CHU de Nancy
  • , D. AubertAffiliated withService de Chirurgie Infantile, Hôpital Saint Jacques – CHU Besançon
  • , J.M. GuysAffiliated withService de Chirurgie Infantile, Hôpital d’Enfants La Timone – CHU de Marseille
  • , H. LottmannAffiliated withService de chirurgie infantile, Hôpital Necker Enfants Malades
  • , S. Lortat-JacobAffiliated withService de chirurgie infantile, Hôpital Necker Enfants Malades
  • , P. MouriquandAffiliated withService de chirurgie infantile, Hôpital Debrousse – CHU de Lyon
  • , A. RuffionAffiliated withService d’urologie, Hôpital Henry Gabriel – CHU de Lyon
  • , J. MoscoviciAffiliated withService de chirurgie infantile, Hôpital d’Enfants – CHU de Toulouse
    • , M. SchmittAffiliated withService de Chirurgie Infantile, Hôpital d’Enfants, CHU de NancyDepartment of Paediatric Surgery, Children’s Hospital, Nancy University School of Medicine

Rent the article at a discount

Rent now

* Final gross prices may vary according to local VAT.

Get Access

Abstract

Purpose:

Spina bifida (SB) is the most common congenital cause of incontinence in childhood. This study attempts to determine the relationships between urinary/faecal incontinence, methods of management, and Health Related Quality of Life (HRQoL) in people with SB.

Patients and method:

A total of 460 patients (300 adults and 160 adolescents) from six centres in France have taken part in this cross-sectional study. Clinical outcome measures included walking ability, urinary/faecal continence, and medical management. HRQoL was assessed using the SF36 in adults and the VSP in adolescents and their parents. Univariate and multivariate analysis was used to determine the relationships between clinical parameters and HRQoL.

Results:

HRQoL were significantly lower than in the general population. Adult women had significantly lower scores than men, and adolescent females had significantly lower scores for psychological well being. We did not found strong relationship between incontinence and HRQoL in this population. Moreover patients surgically managed for urinary/fecal incontinence did not show significantly higher scores of HRQoL.

Conclusion:

Using generic HRQoL measures, urinary/faecal incontinence and their medical management may not play a determinant role in HRQoL of persons with SB. However many other factors affect HRQoL in these patients. A longitudinal study design is recommended to assess whether incontinence management is associated with improve HRQoL.

Keywords

Spinal dysraphism Quality of life Urinary incontinence Fecal incontinence Outcome assessment