Date: 26 Apr 2014
Validation of Self-reported Maternal and Infant Health Indicators in the Pregnancy Risk Assessment Monitoring System
Rent the article at a discountRent now
* Final gross prices may vary according to local VAT.Get Access
To assess the validity of self-reported maternal and infant health indicators reported by mothers an average of 4 months after delivery. Three validity measures—sensitivity, specificity and positive predictive value (PPV)—were calculated for pregnancy history, pregnancy complications, health care utilization, and infant health indicators self-reported on the Pregnancy Risk Assessment Monitoring System (PRAMS) questionnaire by a representative sample of mothers delivering live births in New York City (NYC) (n = 603) and Vermont (n = 664) in 2009. Data abstracted from hospital records served as gold standards. All data were weighted to be representative of women delivering live births in NYC or Vermont during the study period. Most PRAMS indicators had >90 % specificity. Indicators with >90 % sensitivity and PPV for both sites included prior live birth, any diabetes, and Medicaid insurance at delivery, and for Vermont only, infant admission to the NICU and breastfeeding in the hospital. Indicators with poor sensitivity and PPV (<70 %) for both sites (i.e., NYC and Vermont) included placenta previa and/or placental abruption, urinary tract infection or kidney infection, and for NYC only, preterm labor, prior low-birth-weight birth, and prior preterm birth. For Vermont only, receipt of an HIV test during pregnancy had poor sensitivity and PPV. Mothers accurately reported information on prior live births and Medicaid insurance at delivery; however, mothers’ recall of certain pregnancy complications and pregnancy history was poor. These findings could be used to prioritize data collection of indicators with high validity.
Disclaimer The findings and conclusions in this article are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention, the New York City Department of Health and Mental Hygiene, or the Vermont Department of Health.
Stuart, J. J., Merz, C. N. B., Berga, S. L., Miller, V. M., Ouyang, P., Shufelt, C. L., et al. (2013). Maternal recall of hypertensive disorders in pregnancy: A systematic review. Journal of Women’s Health, 22(00), 1–11.
Tilley, B. C., Barnes, A. B., Bergstralh, E., Labarthe, D., Noller, K. L., Colton, T., et al. (1985). A comparison of pregnancy history recall and medical records. Implications for retrospective studies. American Journal of Epidemiology, 121(2), 269–281.PubMed
Hakim, R. B., Tielsch, J. M., & See, L. C. (1992). Agreement between maternal interview- and medical record-based gestational age. American Journal of Epidemiology, 136(5), 566–573.PubMed
Casey, R., Rieckhoff, M., Beebe, S. A., & Pinto-Martin, J. (1992). Obstetric and perinatal events: The accuracy of maternal report. Clinical Pediatrics (Phila), 31(4), 200–204.CrossRef
Githens, P. B., Glass, C. A., Sloan, F. A., & Entman, S. S. (1993). Maternal recall and medical records: An examination of events during pregnancy, childbirth, and early infancy. Birth, 20(3), 136–141. PubMed PMID: 8240621 (Epub 1993/09/01. Eng).
Jurek, A. M., Greenland, S., Spector, L. G., Roesler, M. A., Robison, L. L., & Ross, J. A. (2011). Self-report versus medical record—perinatal factors in a study of infant leukaemia: A study from the Children’s Oncology Group. Paediatric and Perinatal Epidemiology, 25(6), 540–548.PubMedCentralPubMedCrossRef
Piper, J. M. M. E., Snowden, M., Hall, C., Adams, M., & Taylor, P. (1993). Validation of 1989 Tennessee birth certificates using maternal and newborn hospital records. American Journal of Epidemiology, 137(7), 758–768.PubMed
Yudin, M. H., Barbara, A. M., Guenter, D., Shaul, R. Z., Remis, R. S., & King, S. M. (2006). Medical records and women’s self-report are not reliable sources for determining whether prenatal HIV testing was done. Journal of Obstetrics and Gynaecology Canada (JOGC), 28(10), 867–872.
- Validation of Self-reported Maternal and Infant Health Indicators in the Pregnancy Risk Assessment Monitoring System
Maternal and Child Health Journal
Volume 18, Issue 10 , pp 2489-2498
- Cover Date
- Print ISSN
- Online ISSN
- Springer US
- Additional Links
- HIV test
- Industry Sectors
- Author Affiliations
- 1. Division of Reproductive Health, Centers for Disease Control and Prevention, Atlanta, GA, USA
- 2. Program Evaluation Branch, Division of HIV/AIDS Prevention, Centers for Disease Control and Prevention, 1600 Clifton Road, NE, Mailstop E-59, Atlanta, GA, 30333, USA
- 3. Gotham Center, New York City Department of Health and Mental Hygiene, Queens, NY, USA
- 4. Vermont Department of Health, Agency of Human Services, Burlington, VT, USA