Maternal and Child Health Journal

, Volume 17, Issue 3, pp 463–469

Effects of a Medical Home Program for Children with Special Health Care Needs on Parental Perceptions of Care in an Ethnically Diverse Patient Population

  • Leslie J. Hamilton
  • Carlos F. Lerner
  • Angela P. Presson
  • Thomas S. Klitzner
Article

DOI: 10.1007/s10995-012-1018-7

Cite this article as:
Hamilton, L.J., Lerner, C.F., Presson, A.P. et al. Matern Child Health J (2013) 17: 463. doi:10.1007/s10995-012-1018-7

Abstract

The Pediatric Medical Home Program at UCLA enrolled 41 patients in a primary care model focused on providing intensive care coordination for medically complex, ethnically diverse children with special health care needs (CSHCN) in our Pediatric Resident Continuity clinic. We sought to determine the effect of our program on parental satisfaction, and to compare differences in parental satisfaction between English and Spanish speaking patients. The Medical Home Family Index, developed by the Center for Medical Home Improvement, was administered to a total of 22 participating parents, in the family’s primary language by a native speaker, at various times after enrollment in the program. Survey data and language effects were analyzed. The 36 standardized mean scores for the 15 Spanish speaking families were significantly higher (8.5 points higher) than the mean scores from the seven English speaking families (p = 0.003). Although no statistically significant differences were noted in individual questions between Spanish and English speakers, a trend towards more positive responses by Spanish speakers was noted in questions regarding physician-patient communication (p = 0.054) and family-centeredness (p = 0.053). Our results suggest that a primary care model focused on providing intensive care coordination produces positive parental perceptions of the organization and delivery of primary care services in a medically complex population of CSHCN. The main finding of the study is that utilizing the AAP’s approach to the medical home model, emphasizing family-centered and culturally competent care, can produce higher satisfaction scores in Spanish speaking parents when compared to English speaking parents.

Keywords

Medical homeChildren with special health care needsCare coordinationParent assessment

Abbreviations

CSHCN

Children with special health care needs

MHFI

Medical Home Family Index

CMHI

Center for Medical Home Improvement

AAP

American Academy of Pediatrics

Copyright information

© Springer Science+Business Media, LLC 2012

Authors and Affiliations

  • Leslie J. Hamilton
    • 1
  • Carlos F. Lerner
    • 1
  • Angela P. Presson
    • 2
  • Thomas S. Klitzner
    • 1
  1. 1.Department of PediatricsMattel Children’s Hospital, UCLA Children’s Health CenterLos AngelesUSA
  2. 2.Department of Pediatrics/BiostatisticsMattel Children’s Hospital, UCLALos AngelesUSA