Methodological Innovations in Data Gathering: Newborn Screening Linkage with Live Births Records, Michigan, 1/2007–3/2008
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Objective To match Michigan birth and newborn screening records to identify and follow-up potentially unscreened infants, assess data quality, and demonstrate the utility of Link Plus linkage software for matching MCH related administrative datasets. Methods Birth and newborn screening records maintained by the Michigan Department of Community Health from January 2007 through March 2008 were used in this study. Link Plus, a freely-available probabilistic record linkage software program developed at the Centers for Disease Control and Prevention, was used to match records. Linkage performance was assessed by the linkage success rate (percentage of valid matches). Follow-up of un-matched records was conducted by the Michigan Newborn Screening Follow-up Program. Results Nearly all (99.2%) of the 142,178 birth records included in this study were successfully matched to newborn screening records. Following a transition to a web-based electronic birth certificate system and inclusion of a newborn screening card identification number on the birth record in 2008, the linkage success rate increased to 99.6% based on analysis of approximately 18,000 records. Of approximately 600 un-matched records, nearly half had received a newborn screen. Approximately 8% of un-matched records were due to parental refusal of newborn screening. Nine children received an initial screen as a result of this study; one was confirmed as having sickle cell trait. Conclusions We have demonstrated that a freely available record linkage software, Link Plus, can be used to successfully match records of MCH databases thereby providing an opportunity for further research and quality assurance investigations.
- Registry Plus, a suite of publicly available software programs for collecting and processing cancer registry data. Atlanta (GA): U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Chronic Disease Prevention and Health Promotion; 2008. Available at www.cdc.gov/cancer/npcr/. Link Plus accessed 12/06/2008.
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- Methodological Innovations in Data Gathering: Newborn Screening Linkage with Live Births Records, Michigan, 1/2007–3/2008
Maternal and Child Health Journal
Volume 14, Issue 3 , pp 360-364
- Cover Date
- Print ISSN
- Online ISSN
- Springer US
- Additional Links
- Newborn screening
- Link Plus
- Record linkage
- Industry Sectors
- Author Affiliations
- 1. Division of Genomics, Perinatal Health and Chronic Disease Epidemiology Bureau of Epidemiology, Michigan Department of Community Health, 201 Capital View, 4-012, Lansing, MI, 48906, USA
- 2. Division for Vital Records and Health Statistics, Michigan Department of Community Health, Lansing, USA
- 3. CDC/NPCR Contractor, Science Applications International Corporation, San Diego, CA, 92121, USA
- 4. CDC/NPCR Contractor, Northrop Grumman, Los Angeles, CA, USA
- 5. National Program of Cancer Registries, Centers for Disease Control and Prevention, Atlanta, GA, USA