Maternal and Child Health Journal

, Volume 9, Issue 2, pp 207–218

Financial Burden for Families of Children with Special Health Care Needs

Authors

    • Center for Child and Adolescent Health PolicyMassachusetts General Hospital
    • Center for Child and Adolescent Health PolicyMassachusetts General Hospital
  • Kristen Smith Hill
    • Center for Child and Adolescent Health PolicyMassachusetts General Hospital
  • Recai Yucel
    • Center for Child and Adolescent Health PolicyMassachusetts General Hospital
  • James M Perrin
    • Center for Child and Adolescent Health PolicyMassachusetts General Hospital
Article

DOI: 10.1007/s10995-005-4870-x

Cite this article as:
Kuhlthau, K., Hill, K.S., Yucel, R. et al. Matern Child Health J (2005) 9: 207. doi:10.1007/s10995-005-4870-x

Abstract

Objectives: We describe family finance-related burden experienced by families with children with special health care needs (CSHCN). The paper further seeks to describe correlates of family financial burden. Methods: We examined correlates of family finance-related burden using multivariate methods and the National Survey of CSHCN, a nationally representative cross-sectional survey of CSHCN. We also examined state-level correlations. Results: Fully 40% of families with CSHCN, or 3,746,000 families nation-wide, experience financial burden related to their child’s condition. Experiencing a finance-related problem is negatively associated with Maternal and Child Health Bureau (MCHB) indicators and positively associated with poor-child health status. States that better meet MCHB indicators generally have lower levels of family finance-related problems. Conclusions: Families with CSHCN have high levels of finance-related family problems. Development of appropriate systems of care appears to offer a mechanism for alleviating the financial burdens of these families.

KEY WORDS

disabilityspecial health care needchildpediatricfamilyfinancial.

Copyright information

© Springer Science + Business Media, Inc. 2005