Journal of Genetic Counseling

, Volume 23, Issue 2, pp 202–211

A Qualitative Inquiry of the Financial Concerns of Couples Opting to Use Preimplantation Genetic Diagnosis to Prevent the Transmission of Known Genetic Disorders

  • Kathryn T. Drazba
  • Michele A. Kelley
  • Patricia E. Hershberger
Original Research

DOI: 10.1007/s10897-013-9638-7

Cite this article as:
Drazba, K.T., Kelley, M.A. & Hershberger, P.E. J Genet Counsel (2014) 23: 202. doi:10.1007/s10897-013-9638-7

Abstract

Preimplantation genetic diagnosis (PGD) is an innovative prenatal testing option because the determination of whether a genetic disorder or chromosomal abnormality is evident occurs prior to pregnancy. However, PGD is not covered financially under the majority of private and public health insurance institutions in the United States, leaving couples to decide whether PGD is financially feasible. The aim of this qualitative study was to understand the role of finances in the decision-making process among couples who were actively considering PGD. In-depth, semi-structured interviews were completed with 18 genetic high-risk couples (36 individual partners). Grounded theory guided the analysis, whereby three themes emerged: 1) Cost is salient, 2) Emotions surrounding affordability, and 3) Financial burden and sacrifice. Ultimately, couples determined that the opportunity to avoid passing on a genetic disorder to a future child was paramount to the cost of PGD, but expressed financial concerns and recognized financial access as a major barrier to PGD utilization.

Keywords

Cost Decision-making Economics Preimplantation Genetic Diagnosis (PGD) In Vitro Fertilization (IVF) Family planning Genetic counseling Qualitative research 

Copyright information

© National Society of Genetic Counselors, Inc. 2013

Authors and Affiliations

  • Kathryn T. Drazba
    • 1
  • Michele A. Kelley
    • 2
  • Patricia E. Hershberger
    • 3
  1. 1.Population SciencePennington Biomedical Research CenterBaton RougeUSA
  2. 2.School of Public HealthUniversity of Illinois at ChicagoChicagoUSA
  3. 3.College of Nursing & College of MedicineUniversity of Illinois at ChicagoChicagoUSA

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