Journal of Genetic Counseling

, Volume 19, Issue 3, pp 296–304

Health Care Professionals’ Views of Sharing Information with Families Who Have a Child with a Genetic Condition

  • Agatha M. Gallo
  • Denise B. Angst
  • Kathleen A. Knafl
  • John G. Twomey
  • Emily Hadley
Original Research

DOI: 10.1007/s10897-010-9286-0

Cite this article as:
Gallo, A.M., Angst, D.B., Knafl, K.A. et al. J Genet Counsel (2010) 19: 296. doi:10.1007/s10897-010-9286-0

Abstract

The purpose of this study was to examine health care professionals’ views and strategies for individualizing information sharing in families who have a child with a genetic condition. The sample consisted of 37 health professionals from three clinical sites in the greater metropolitan area of a large Midwestern city. Qualitative content thematic analysis was used to analyze data from the health professionals’ semi-structured interviews. Four themes captured how health care professionals work with families around information management: Sharing Information with Parents, Taking into Account Parental Preferences, Understanding of the Condition, and Helping Parents Inform Others. These findings contribute to understanding the processes that health professionals use in sharing information with parents who have children with a genetic condition, and they provide guidance for clinical practice, professional training, and future research.

Keywords

Health care professionals Information sharing Genetics Qualitative research Communications 

Copyright information

© National Society of Genetic Counselors, Inc. 2010

Authors and Affiliations

  • Agatha M. Gallo
    • 1
  • Denise B. Angst
    • 2
  • Kathleen A. Knafl
    • 3
  • John G. Twomey
    • 4
  • Emily Hadley
    • 2
  1. 1.University of Illinois at Chicago, College of Nursing (M/C 802), Women, Children and Family Health ScienceChicagoUSA
  2. 2.Advocate Center for Pediatric Research, Advocate Health CareOak BrookUSA
  3. 3.University of North Carolina, School of NursingChapel HillUSA
  4. 4.School of NursingMGH Institute of Health ProfessionsBostonUSA

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