Journal of Clinical Psychology in Medical Settings

, Volume 18, Issue 4, pp 335–344

Health-Related Quality of Life and Adaptive Behaviors of Adolescents with Sickle Cell Disease: Stress Processing Moderators

  • Maisa S. Ziadni
  • Chavis A. Patterson
  • Elizabeth R. Pulgarón
  • M. Renée Robinson
  • Lamia P. Barakat
Article

DOI: 10.1007/s10880-011-9254-3

Cite this article as:
Ziadni, M.S., Patterson, C.A., Pulgarón, E.R. et al. J Clin Psychol Med Settings (2011) 18: 335. doi:10.1007/s10880-011-9254-3

Abstract

The objective of this study was to examine resilience among adolescents with sickle cell disease (SCD), focusing on the interaction of health-related quality of life with stress processing to explain adaptive behavior. Forty-four adolescents with SCD completed paper-and-pencil measures of health-related quality of life, appraisals (hope), pain coping strategies (e.g. adherence), and adaptive behavior. Self-reported health-related quality of life was significantly associated with adaptive behavior, as was adherence. Findings for moderation were mixed. Pain coping strategies moderated the association of health-related quality of life with adaptive behavior such that at lower levels of Coping Strategies Questionnaire (CSQ) Adherence, better quality of life was associated with higher adaptive behavior. Similarly, at higher levels of hope, better quality of life was associated with higher adaptive behavior, and poorer quality of life was associated with lower adaptive behavior. Adolescents with SCD showed resilience, particularly in terms of personal adjustment, that may be explained by their appraisals and stress processing strategies. Interventions to support an optimistic or hopeful outlook and improve adherence to recommendations for medical management of sickle cell pain may result in improved resilience/adaptive behavior.

Keywords

Sickle cell disease Adolescents Adaptive behavior Stress processing Coping strategies 

Copyright information

© Springer Science+Business Media, LLC 2011

Authors and Affiliations

  • Maisa S. Ziadni
    • 1
  • Chavis A. Patterson
    • 1
  • Elizabeth R. Pulgarón
    • 2
  • M. Renée Robinson
    • 3
    • 4
  • Lamia P. Barakat
    • 1
    • 5
  1. 1.Division of OncologyThe Children’s Hospital of PhiladelphiaPhiladelphiaUSA
  2. 2.University of Miami Miller School of MedicineMiamiUSA
  3. 3.St. Christopher’s Hospital for ChildrenPhiladelphiaUSA
  4. 4.Drexel University College of MedicinePhiladelphiaUSA
  5. 5.University of Pennsylvania School of MedicinePhiladelphiaUSA

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