Journal of Autism and Developmental Disorders

, Volume 42, Issue 5, pp 797–804

Service and Wider Societal Costs of Very Young Children with Autism in the UK

  • Barbara Barrett
  • Sarah Byford
  • Jessica Sharac
  • Kristelle Hudry
  • Kathy Leadbitter
  • Kathryn Temple
  • Catherine Aldred
  • Vicky Slonims
  • Jonathan Green
  • PACT Consortium
Original Paper

DOI: 10.1007/s10803-011-1306-x

Cite this article as:
Barrett, B., Byford, S., Sharac, J. et al. J Autism Dev Disord (2012) 42: 797. doi:10.1007/s10803-011-1306-x

Abstract

Autism spectrum disorders (ASD) are associated with a substantial economic burden, but there is little evidence of the costs in the early years; the period in which children are increasingly likely to be diagnosed. We describe the services used by 152 children aged 24–60 months with autism, report family out-of-pocket expenses and productivity losses, and explore the relationship between family characteristics and costs. Children received a wide range of hospital and community services including relatively high levels of contact with speech and language therapists and paediatricians. Total service costs varied greatly (mean £430 per month; range £53 to £1,116), with some families receiving little statutory support. Higher costs were associated with increasing age and symptom severity.

Keywords

CostVery young childrenAutismService use

Copyright information

© Springer Science+Business Media, LLC 2011

Authors and Affiliations

  • Barbara Barrett
    • 1
  • Sarah Byford
    • 1
  • Jessica Sharac
    • 1
  • Kristelle Hudry
    • 2
    • 7
  • Kathy Leadbitter
    • 3
  • Kathryn Temple
    • 4
  • Catherine Aldred
    • 5
  • Vicky Slonims
    • 6
  • Jonathan Green
    • 3
  • PACT Consortium
  1. 1.King’s College LondonInstitute of PsychiatryLondonUK
  2. 2.Institute of Child HealthUniversity College LondonLondonUK
  3. 3.University of ManchesterManchesterUK
  4. 4.Newcastle UniversityNewcastleUK
  5. 5.Stockport Primary Care TrustStockportUK
  6. 6.Guy’s and St. Thomas NHS Foundation TrustLondonUK
  7. 7.Centre for Research in Autism and Education, Institute of EducationLondonUK