Journal of Autism and Developmental Disorders

, Volume 35, Issue 3, pp 351–360

Autism after Adolescence: Population-based 13- to 22-year Follow-up Study of 120 Individuals with Autism Diagnosed in Childhood

Authors

    • Department of Child and Adolescent PsychiatryQueen Silvia’s Hospital for Children and Adolescents
    • Department of Child and Adolescent PsychiatryUniversity of Göteborg
  • Carina Gillberg
    • Department of Child and Adolescent PsychiatryQueen Silvia’s Hospital for Children and Adolescents
  • Christopher Gillberg
    • Department of Child and Adolescent PsychiatryQueen Silvia’s Hospital for Children and Adolescents
    • St George’s Hospital Medical School
Article

DOI: 10.1007/s10803-005-3302-5

Cite this article as:
Billstedt, E., Gillberg, C. & Gillberg, C. J Autism Dev Disord (2005) 35: 351. doi:10.1007/s10803-005-3302-5

Abstract

Background: Prospective population-based follow-up study of 120 individuals with autism followed from childhood to adulthood. Methods: Individuals with autism, diagnosed in childhood, were followed prospectively for a period of 13–22 years and re-evaluated at ages 17–40 years. The instruments used at follow-up were the DISCO, WAIS-R, WISC-III, Vineland Adaptive Behavior Scales, psychiatric-medical examination and GAF-scale. A set of criteria was used for the classification of outcomes, taking into consideration employment, higher education/vocational training, independent living and peer relations. Results: Six of the 120 (5%) had died at the time of follow-up, and six declined participation. Overall outcome was poor in 78% of cases. Only four individuals were independent albeit leading fairly isolated lives. Childhood IQ-level was positively correlated with better adult outcome, as was the existence of some communicative phrase speech at age six years. Conclusions: Children with autism as diagnosed in the 1960s, 1970s, and 1980s may have an even worse psychosocial outcome than previously believed.

Keywords

Autism epidemiology outcome epilepsy adolescence

Copyright information

© Springer Science+Business Media, Inc. 2005