Familial Cancer

, Volume 5, Issue 4, pp 405–409

Awareness of gynecologic surveillance in women from hereditary non-polyposis colorectal cancer families

Authors

  • Kathleen Yang
    • Division of Gynecologic Oncology, Department of Obstetrics, Gynecology, and Reproductive SciencesUCSF Comprehensive Cancer Center
  • Brian Allen
    • Colorectal Cancer Prevention Program, Cancer Risk Program, UCSF Comprehensive Cancer Center
  • Peggy Conrad
    • Colorectal Cancer Prevention Program, Cancer Risk Program, UCSF Comprehensive Cancer Center
  • C. Bethan Powell
    • Division of Gynecologic Oncology, Department of Obstetrics, Gynecology, and Reproductive SciencesUCSF Comprehensive Cancer Center
  • Jonathan Terdiman
    • Colorectal Cancer Prevention Program, Cancer Risk Program, UCSF Comprehensive Cancer Center
    • Division of Gynecologic Oncology, Department of Obstetrics, Gynecology, and Reproductive SciencesUCSF Comprehensive Cancer Center
Original Paper

DOI: 10.1007/s10689-006-0012-x

Cite this article as:
Yang, K., Allen, B., Conrad, P. et al. Familial Cancer (2006) 5: 405. doi:10.1007/s10689-006-0012-x

Abstract

Objective

To determine knowledge of gynecologic cancer risk and screening in women with HNPCC.

Study design

Forty-three women with HNPCC were counseled through a gastrointestinal cancer risk program, and later sent a questionnaire regarding their screening practices for gynecologic neoplasms.

Results

Twenty-seven (63%) of 43 responded. Fifteen (55%) of 27 had previously been diagnosed with cancer. Among 16 women with a uterus, 11 (69%) reported surveillance by ultrasound or endometrial sampling. Among 21 respondents with ovaries, 13 (62%) reported screening by ultrasound or CA125. Twenty-two (81%) of 27 had seen a gynecologist after receiving their HNPCC diagnosis, but only 12% recalled hearing about risks from their gynecologist, and␣8% from their gynecologic oncologist. Genetic counselors were cited as the most common source (48%) of gynecologic cancer risk information.

Conclusions

While the effectiveness of surveillance remains in question, gynecologists can be a source of information regarding gynecologic cancer risk for women from HNPCC families.

Keywords

Endometrial cancerHereditary non-polyposis colorectal cancerOvarian cancerSurveillance

Copyright information

© Springer Science+Business Media B.V. 2006