Developing Visually Based, Low-Literacy Health Education Tools for African Americans with Psychotic Disorders and Their Families
First Online: 16 March 2014 Received: 30 January 2012 Accepted: 18 November 2013 DOI:
Cite this article as: Broussard, B., Radkins, J.B. & Compton, M.T. Community Ment Health J (2014) 50: 629. doi:10.1007/s10597-013-9666-7 Abstract
Schizophrenia presents particular challenges to health literacy, partly due to associated neurocognitive deficits. In order to develop engaging, recovery-oriented, visually based psychoeducational tools pertaining to psychotic disorders, thirty-nine individuals, consisting of mental health service users with serious mental illnesses, family members, and mental health professionals, participated in informal discussions. Using suggestions from these groups, the first two psychoeducational booklets of a planned series were developed in collaboration with a graphic designer and visual artist. Content of the booklets was developed addressing four components: knowledge, self-efficacy/self-management, incorporating a workbook format, and planning/contracting. In a follow-up discussion group, mental health service users provided positive feedback on the completed booklets. The finished booklets are practical, accessible, engaging, and low-literacy. These and other innovative approaches are needed to enhance mental health care, promote self-efficacy/empowerment, and encourage communication between service users, family members, and providers, especially in light of limited health literacy, illness-related neurocognitive impairments, and stigma.
Keywords Health literacy Psychoeducation Psychosis Schizophrenia
When this work was conducted, Dr. Compton and Ms. Broussard were affiliated with the Department of Psychiatry and Behavioral Sciences, Emory University School of Medicine, Atlanta, Georgia, USA.
Alvidrez, J., Snowden, L. R., Rao, S. M., & Boccellari, A. (2009). Psychoeducation to address stigma in black adults referred for mental health treatment: A randomized pilot study.
Community Mental Health Journal,
Chao, S., Anderson, K., & Hernandez, L. (2009).
Toward health equity and patient-centeredness: Integrating health literacy, disparities reduction, and quality improvement: Workshop summary. Washington, DC: Institute of Medicine, The National Academies Press.
Corrigan, P. W., Green, A., Lundin, R., Kubiak, M. A., & Penn, D. L. (2001). Familiarity with and social distance from people who have serious mental illness.
DeWalt, D. A., Pigone, M., Malone, R., Rawls, C., Kosnar, M. C., George, G., et al. (2004). Development and testing of a disease management system for low literacy patients with heart failure.
Patient Education and Counseling,
Edwards, J., & McGorry, P. M. (1997). Psychoeducation. In J. Edwards & P. M. McGorry (Eds.),
Early psychosis training pack. Macclesfield: Gardiner-Caldwell Communications Ltd.
Gutiérrez-Maldonado, J., Caqueo-Urízar, A., & Ferrer-García, M. (2009). Effects of a psychoeducational intervention program on the attitudes and health perceptions of relatives of patients with schizophrenia.
Social Psychiatry and Psychiatric Epidemiology,
Kincaid, J.P., Fishburne, R.P., Jr., Rogers, R.L., & Chissom, B.S. (1975).
Derivation of new readability formulas (Automated Readability Index, Fog Count and Flesch Reading Ease Formula) for Navy enlisted personnel. Research Branch Report 8–75. Millington, TN: Naval Technical Training.
Kincaid, J. P., & Gamble, L. G. (1977). Ease of comprehension of standard and readable automobile insurance policies as a function of reading ability.
Journal of Literacy Research,
Lee, C., McGlashan, T. H., & Woods, S. W. (2005). Prevention of schizophrenia: Can it be achieved?
New Freedom Commission on Mental Health. (2003).
Achieving the promise: Transforming mental health care in America. Final report. Rockville, MD: U.S. Department of Health and Human Services.
Nielsen-Bohlman, L., Panzer, A. M., & King, D. A. (Eds.). (2004).
Health literacy: A prescription to end confusion. Washington, DC: Institute of Medicine, The National Academies Press.
Nuechterlein, K. H., Barch, D. M., Gold, J. M., Goldberg, T. E., Green, M. F., & Heaton, R. K. (2004). Identification of separable cognitive factors in schizophrenia.
Rummel-Kluge, C., & Kissling, W. (2008). Psychoeducation for patients with schizophrenia and their families.
Expert Review of Neurotherapeutics,
U.S. Department of Health and Human Services. (2010).
Healthy people 2020. Rockville, MD: U.S. Department of Health and Human Services, Office of Disease Prevention and Health Promotion.
U.S. Public Health Service Office of the Surgeon General. (1999).
Mental health: A report of the surgeon general. Rockville, MD: U.S. Department of Health and Human Services, U.S. Public Health Service.
Vickar, G. M., North, C. S., Downs, D., & Marshall, D. L. (2009). A randomized controlled trial of a private-sector inpatient-initiated psychoeducation program for schizophrenia.
Vreeland, B., Minsky, S., Yanos, P. T., Menza, M., Gara, M., Kim, E., et al. (2006). Efficacy of the team solutions program for educating patients about illness management and treatment.
Wilk, C. M., Gold, J. M., Humber, K., Dickerson, F., Fenton, W. S., & Buchanan, R. W. (2004). Brief cognitive assessment in schizophrenia: Normative data for the repeatable battery for the assessment of neuropsychological status.
Xia, J., Merinder, L.B. & Belgamwar, M.R. (2011). Psychoeducation for schizophrenia. Cochrane Database of Systematic Reviews. CD002831.
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