Supportive Care in Cancer

, Volume 22, Issue 4, pp 1009–1015

Changing communication needs and preferences across the cancer care trajectory: insights from the patient perspective

  • Sally Thorne
  • T. Gregory Hislop
  • Charmaine Kim-Sing
  • Valerie Oglov
  • John L. Oliffe
  • Kelli I. Stajduhar
Original Article

DOI: 10.1007/s00520-013-2056-4

Cite this article as:
Thorne, S., Hislop, T.G., Kim-Sing, C. et al. Support Care Cancer (2014) 22: 1009. doi:10.1007/s00520-013-2056-4

Abstract

Purpose

In this program of research, we sought to expand our understanding of how cancer patients' communication needs and preferences change across the course of their illness trajectory. To address known limitations in the empirical knowledge base, we designed a study capitalizing on representative patient reports as they occurred within time and across experience obtaining care for this disease.

Methods

We used a longitudinal cohort design informed by interpretive description methodology to follow 125 patients over a multi-year period as they reflected on their ongoing experiences with cancer care communication.

Results

In relation to each phase of their cancer care trajectory, patients identified tension points and contextual challenges impinging on what they felt constituted helpful and unhelpful patient–provider communication.

Conclusions

Findings from this study create a dynamic portrait of how we can better inform communication approaches and interventions through interpretations of population knowledge and individual experience.

Keywords

Communication Cancer experience Physician–patient relationship Psychosocial oncology Patient-reported outcomes 

Copyright information

© Springer-Verlag Berlin Heidelberg 2013

Authors and Affiliations

  • Sally Thorne
    • 1
  • T. Gregory Hislop
    • 2
  • Charmaine Kim-Sing
    • 3
  • Valerie Oglov
    • 1
  • John L. Oliffe
    • 1
  • Kelli I. Stajduhar
    • 4
  1. 1.School of NursingUniversity of British ColumbiaVancouverCanada
  2. 2.School of Population and Public HealthUniversity of British ColumbiaVancouverCanada
  3. 3.Department of Radiation OncologyBritish Columbia Cancer AgencyVancouverCanada
  4. 4.School of NursingUniversity of VictoriaVictoriaCanada

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