Supportive Care in Cancer

, Volume 16, Issue 12, pp 1353–1360

Information and service needs for young adult cancer patients

Original Article

DOI: 10.1007/s00520-008-0435-z

Cite this article as:
Zebrack, B. Support Care Cancer (2008) 16: 1353. doi:10.1007/s00520-008-0435-z

Abstract

Background

Young adulthood is a time of increased vulnerability to stress and presents young adult cancer patients and off-treatment survivors with major developmental challenges above and beyond those faced by their peers. The intent of this study was to examine supportive care needs and preferences among young adult cancer patients.

Methods

Two hundred and seventeen young adults aged 18–40 years and diagnosed with cancer between the ages of 15–35 completed an online survey. Adapted from prior research on young adult survivors of childhood cancer, questions assessed the extent to which subjects had utilized various information and supportive care services and/or expressed a desire to use those services either now or in the past.

Results

While young adult patients demonstrate a high demand for information and assistance regarding diet and nutrition, exercise, fertility options, complementary and alternative services and assistance with health insurance, 40–50% of patients report that these needs are unmet. More than 50% of respondents who indicated a need or desire for camp programs and retreats, counseling or guidance related to sexuality, counseling for family members, infertility treatment and adoption services, transportation assistance, child care and alcohol or drug abuse counseling also indicated that these needs were unmet. Younger respondents (18–29 years olds) were significantly more likely to indicate unmet needs for the supportive care services assessed here.

Conclusion

Findings serve as recommendations as to when and to whom to target delivery of supportive care services.

Keywords

Young adultNeeds assessmentCancerPsychosocialSupport services

Copyright information

© Springer-Verlag 2008

Authors and Affiliations

  1. 1.University of Southern California School of Social WorkLos AngelesUSA