International Urogynecology Journal

, Volume 24, Issue 6, pp 977–982

Interstitial cystitis patients’ use and rating of complementary and alternative medicine therapies

  • Peter Gregory O’HareIII
  • Amy Rejba Hoffmann
  • Penny Allen
  • Barbara Gordon
  • Linda Salin
  • Kristene Whitmore
Original Article

DOI: 10.1007/s00192-012-1966-x

Cite this article as:
O’Hare, P.G., Hoffmann, A.R., Allen, P. et al. Int Urogynecol J (2013) 24: 977. doi:10.1007/s00192-012-1966-x

Abstract

Introduction and hypothesis

The purpose of this study was to describe the use of complementary and alternative medicine (CAM) therapies among interstitial cystitis (IC) patients, patients’ perception of CAM therapies’ effectiveness, and the association of time since diagnosis with perceived effectiveness of these therapies.

Methods

In April 2009, the Interstitial Cystitis Association (ICA) initiated an Internet-based survey on CAM. Respondents indicated whether they received an IC diagnosis and how long ago, whether they tried CAM, and who recommended it. On a 5-point scale, respondents rated 49 therapies. For respondents confirming a diagnosis, we used a chi-square goodness-of-fit test to assess which therapies were rated positively or negatively by a majority of patients who tried them. Using separate one-way analyses of variance, we assessed differences in mean perceived effectiveness among groups based on time since diagnosis and conducted post hoc tests, if necessary. Using chi-square tests, we explored the association of time since diagnosis with the use of CAM and the number of therapies tried.

Results

A total of 2,101 subjects responded to the survey; 1,982 confirmed an IC diagnosis. Most (84.2 %) had tried CAM, and 55 % said physicians had recommended CAM. Of those trying CAM, 82.8 % had tried diet or physical therapy and 69.2 % other therapies. Of the therapies, 22 were rated positively and 20 negatively; 7 were inconclusive. Therapies patients perceived to be helpful included dietary management and pain management adjuncts such as physical therapy, heat and cold, meditation and relaxation, acupuncture, stress reduction, exercise, and sleep hygiene. Many therapies worked better for those diagnosed recently than for those diagnosed long before.

Conclusions

Randomized, placebo-controlled studies are needed to demonstrate which therapies may indeed control IC symptoms and help send research in new and productive directions.

Keywords

Interstitial cystitis Complementary therapies Diet therapy Physical therapy modalities 

Abbreviations and acronyms

ANOVA

Analysis of variance

CAM

Complementary and alternative medicine

IC

Interstitial cystitis

ICA

Interstitial Cystitis Association

NIDDK

National Institute of Diabetes and Digestive and Kidney Diseases

Copyright information

© The International Urogynecological Association 2012

Authors and Affiliations

  • Peter Gregory O’HareIII
    • 1
  • Amy Rejba Hoffmann
    • 3
  • Penny Allen
    • 2
  • Barbara Gordon
    • 2
  • Linda Salin
    • 2
  • Kristene Whitmore
    • 1
  1. 1.Female Pelvic Medicine and Reconstructive SurgeryDrexel University College of MedicinePhiladelphiaUSA
  2. 2.Interstitial Cystitis AssociationRockvilleUSA
  3. 3.Pelvic and Sexual Health InstitutePhiladelphiaUSA