Digestive Diseases and Sciences

, Volume 34, Issue 9, pp 1379–1386

Health-related quality of life in inflammatory bowel disease

Functional status and patient worries and concerns
  • Douglas A. Drossman
  • Donald L. Patrick
  • C. Madeline Mitchell
  • Edwina A. Zagami
  • Mark I. Appelbaum
Original Articles

DOI: 10.1007/BF01538073

Cite this article as:
Drossman, D.A., Patrick, D.L., Mitchell, C.M. et al. Digest Dis Sci (1989) 34: 1379. doi:10.1007/BF01538073

Abstract

The assessment of health-related quality of life may be an adjunct to understanding the chronic illness experience and its effects on health outcomes. In this study, we evaluated health-related quality of life of 150 patients with inflammatory bowel disease (63 ulcerative colitis, 87 Crohn's disease). We used a standardized measure, the Sickness Impact Profile, and a questionnaire we developed that elicits and prioritizes the disease-related worries and concerns of patients with IBD. Our preliminary data indicate that: (1) IBD patients experience moderate functional impairment more in the social and psychological than in the physical dimensions; (2) Crohn's disease patients report psychosocial dysfunction to a greater degree than ulcerative colitis patients; (3) IBD patients report greatest concerns about having surgery, degree of energy, and body image issues such as having an ostomy bag; and (4) functional status and patient concerns correlate better with other measures of health status and previous health care utilization than the physician's rating of disease activity. We believe that questionnaires measuring health-related quality of life (HRQOL) can be used in research and patient care to extend the clinical assessment of patients with IBD. Further work is needed to determine the role of HRQOL relative to disease activity and other physician-based assessments in predicting health outcomes.

Key words

inflammatory bowel diseaseulcerative colitisCrohn's diseasehealth statusquality of lifedisease concernsfunctional statushealth-related quality of lifepsychosocial

Copyright information

© Plenum Publishing Corporation 1989

Authors and Affiliations

  • Douglas A. Drossman
    • 1
  • Donald L. Patrick
    • 1
  • C. Madeline Mitchell
    • 1
  • Edwina A. Zagami
    • 1
  • Mark I. Appelbaum
    • 1
  1. 1.Departments of Medicine, Psychiatry and PsychologyUniversity of North Carolina School of Medicine at Chapel HillChapel Hill
  2. 2.Division of Digestive DiseasesUniversity of North CarolinaChapel Hill