Skip to main content

Advertisement

Log in

The mediating role of self-stigma and unmet needs on the recovery of people with schizophrenia living in the community

  • Published:
Quality of Life Research Aims and scope Submit manuscript

Abstract

Purpose

For people with schizophrenia living in the community and receiving outpatient care, the issues of stigma and discrimination and dearth of recovery-oriented services remain barriers to recovery and community integration. The experience of self-stigma and unmet recovery needs can occur regardless of symptom status or disease process, reducing life satisfaction and disrupting overall well-being. The present study examined the mediating role of self-stigma and unmet needs in the relationship between psychiatric symptom severity and subjective quality of life.

Methods

Structural equation modeling and mediation analyses were conducted based on a community sample of 400 mental health consumers with schizophrenia spectrum disorders in Hong Kong.

Results

The model of self-stigma and unmet needs as mediators between symptom severity and subjective quality of life had good fit to the data (GFI = .93, CFI = .93, NNFI = .92, RMSEA = .06, χ2/df ratio = 2.62). A higher level of symptom severity was significantly associated with increased self-stigma (R 2 = .24) and a greater number of unmet needs (R 2 = .53). Self-stigma and unmet needs were in turn negatively related to subjective quality of life (R 2 = .45).

Conclusions

It is essential that service providers and administrators make greater efforts to eliminate or reduce self-stigma and unmet recovery needs, which are associated with the betterment of the overall quality of life and long-term recovery. Both incorporating empowerment and advocacy-based interventions into recovery-oriented services and providing community-based, person-centered services to people based on personally defined needs are important directions for future recovery-oriented efforts.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Fig. 1

Similar content being viewed by others

References

  1. Silverstein, S. M., & Bellack, A. S. (2008). Scientific agenda for the concept of recovery as it applies to schizophrenia. Clinical Psychology Review, 28, 1108–1124.

    Article  PubMed  Google Scholar 

  2. Tse, S., Siu, B. W., & Kan, A. (2013). Can recovery-oriented mental health services be created in Hong Kong? Struggles and strategies. Administration and Policy In Mental Health, 40, 155–158.

    Article  PubMed  PubMed Central  Google Scholar 

  3. Substance Abuse and Mental Health Services Administration. (2005). National consensus conference on mental health recovery and systems transformation. Rockville, MD: Department of Health and Human Services, United States Government.

  4. New Freedom Commission on Mental Health. (2003). Achieving the promise: Transforming mental health care in America. Final Report. Rockville, MD: Department of Health and Human Services. Publication SMA-03-3832.

  5. Onken, S. J., Craig, C. M., Ridgway, P., Ralph, R. O., & Cook, J. A. (2007). An analysis of the definitions and elements of recovery: A review of the literature. Psychiatric Rehabilitation Journal, 31, 9–22.

    Article  PubMed  Google Scholar 

  6. Lloyd, C., King, R., & Moore, L. (2010). Subjective and objective indicators of recovery in severe mental illness: A cross-sectional study. International Journal of Social Psychiatry, 56, 220–229.

    Article  PubMed  Google Scholar 

  7. Crisp, A. H., Gelder, M. G., Rix, S., Meltzer, H. I., & Rowlands, O. J. (2000). Stigmatisation of people with mental illnesses. British Journal of Psychiatry, 177, 4–7.

    Article  PubMed  CAS  Google Scholar 

  8. World Health Organization. (2008). The global burden of disease: 2004 update. Geneva: World Health Organization.

    Google Scholar 

  9. Mak, W. W. S., Poon, C. Y. M., Pun, L. Y. K., & Cheung, S. F. (2007). Meta-analysis of stigma and mental health. Social Science and Medicine, 65, 245–261.

    Article  PubMed  Google Scholar 

  10. Wu, C. F. M., Mak, W. W. S., & Wan, D. L. Y. (2007). Quality of life of mental health consumers in Hong Kong: Analysis of service perceptions. Quality of Life Research, 16, 31–40.

    Article  PubMed  CAS  Google Scholar 

  11. Lam, M. M., Pearson, V., Ng, R. M., Chiu, C. P., Law, C. W., & Chen, E. Y. (2011). What does recovery from psychosis mean? Perceptions of young first-episode patients. International Journal of Social Psychiatry, 57, 580–587.

    Article  PubMed  Google Scholar 

  12. Ng, R. M., Pearson, V., Chen, E. E., & Law, C. W. (2011). What does recovery from schizophrenia mean? Perceptions of medical students and trainee psychiatrists. International Journal of Social Psychiatry, 57, 248–262.

    Article  PubMed  Google Scholar 

  13. Ng, R. M., Pearson, V., Lam, M., Law, C. W., Chiu, C. P., & Chen, E. Y. (2008). What does recovery from schizophrenia mean? Perceptions of long-term patients. International Journal of Social Psychiatry, 54, 118–130.

    Article  PubMed  Google Scholar 

  14. Mak, W., Lam, B., & Yan, S. (2010). Recovery knowledge and recovery-oriented services in Hong Kong. Psychiatric Services, 61, 1164.

    Article  PubMed  Google Scholar 

  15. Mak, W. W. S., Chong, E. S. K., & Wong, C. C. Y. (2014). Beyond attributions—Understanding public stigma of mental illness with the common sense model. American Journal of Orthopsychiatry, 84, 173–181.

    Google Scholar 

  16. Lee, S., Lee, M. T. Y., Chiu, M. Y. L., & Kleinman, A. (2005). Experience of social stigma by people with schizophrenia in Hong Kong. British Journal of Psychiatry, 186, 153–157.

    Article  PubMed  Google Scholar 

  17. Tsang, H. W. H., Angell, B., Corrigan, P. W., Lee, Y.-T., Shi, K., Lam, C. S., et al. (2007). A cross-cultural study of employers’ concerns about hiring people with psychotic disorder: Implications for recovery. Social Psychiatry and Psychiatric Epidemiology, 42, 723–733.

    Article  PubMed  Google Scholar 

  18. Tsang, H. W. H., Tam, P. K. C., Chan, F., & Cheung, W. M. (2003). Stigmatizing attitudes towards individuals with mental illness in Hong Kong: Implications for their recovery. Journal of Community Psychology, 31, 383–396.

    Article  Google Scholar 

  19. Corrigan, P. W., & Watson, A. C. (2002). The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice, 9, 35–53.

    Google Scholar 

  20. Mak, W. W. S., & Cheung, R. Y. M. (2010). Self-stigma among concealable minorities in Hong Kong: Conceptualization and unified measurement. American Journal of Orthopsychiatry, 80, 263–277.

    Article  Google Scholar 

  21. Lysaker, P. H., Roe, D., & Yanos, P. T. (2007). Toward understanding the insight paradox: Internalized stigma moderates the association between insight and social functioning, hope, and self-esteem among people with schizophrenia spectrum disorders. Schizophrenia Bulletin, 33, 192–199.

    Article  PubMed  PubMed Central  Google Scholar 

  22. Ritsher, J. B., Otilingam, P. G., & Grajales, M. (2003). Internalized stigma of mental illness: Psychometric properties of a new measure. Psychiatry Research, 121, 31–49.

    Article  PubMed  Google Scholar 

  23. Vauth, R., Kleim, B., Wirtz, M., & Corrigan, P. (2007). Self-efficacy and empowerment as outcomes of self-stigmatizing and coping schizophrenia. Psychiatry Research, 150, 71–80.

    Article  PubMed  Google Scholar 

  24. Yanos, P. T., Roe, D., Markus, K., & Lysaker, P. H. (2008). Pathways between internalised stigma and outcomes related to recovery in schizophrenia spectrum disorders. Psychiatric Services, 59, 1437–1442.

    Article  PubMed  PubMed Central  Google Scholar 

  25. Gunnmo, P., & Fatouros Bergman, H. (2011). What do individuals with schizophrenia need to increase their well-being. International Journal of Qualitative Studies on Health and Well-Being, 6, 5412.

    Article  Google Scholar 

  26. Minnes, P., Carlson, P., McColl, M. A., Nolte, M. L., Johnston, J., & Buell, K. (2003). Community integration: A useful construct, but what does it really mean? Brain Injury, 17, 149–159.

    Article  PubMed  Google Scholar 

  27. Hansson, L., Sandlund, M., Bengtsson-Tops, A., Bjarnason, O., Karlsson, H., Mackeprang, T., et al. (2003). The relationship of needs and quality of life in persons with schizophrenia living in the community. A Nordic multi-center study. Nordic Journal of Psychiatry, 57, 5–11.

    Article  PubMed  Google Scholar 

  28. Grinshpoon, A., & Ponizovsky, A. M. (2008). The relationships between need profiles, clinical symptoms, functioning and the well-being of inpatients with severe mental disorders. Journal of Evaluation in Clinical Practice, 14, 218–225.

    Article  PubMed  Google Scholar 

  29. Chiu, M. Y., Ho, W. W., Lo, W. T., & Yiu, M. G. (2010). Operationalization of the SAMHSA model of recovery: A quality of life perspective. Quality of Life Research, 19, 1–13.

    Article  PubMed  Google Scholar 

  30. Davidson, L., & Roe, D. (2007). Recovery from versus recovery in serious mental illness: One strategy for lessening the confusion plaguing recovery. Journal of Mental Health, 16, 459–470.

    Article  Google Scholar 

  31. Roe, D., Mashiach-Eizenberg, M., & Lysaker, P. H. (2011). The relation between objective and subjective domains of recovery among persons with schizophrenia-related disorders. Schizophrenia Research, 131, 133–138.

    Article  PubMed  Google Scholar 

  32. Lambert, M., Naber, D., Eich, F. X., Schacht, M., Linden, M., & Schimmelmann, B. G. (2007). Remission of severely impaired subjective wellbeing in 727 patients with schizophrenia treated with amisulpride. Acta Psychiatrica Scandinavica, 115, 106–113.

    Article  PubMed  CAS  Google Scholar 

  33. Lieberman, J. A., Drake, R. E., Sederer, L. I., Belger, A., Keefe, R., Perkins, D., et al. (2008). Science and recovery in schizophrenia. Psychiatric Services, 59, 487–496.

    Article  PubMed  Google Scholar 

  34. Angermeyer, M. C., & Kilian, R. (1997). Theoretical models of quality of life for mental disorders. In N. Sartorius (Ed.), Quality of life in mental disorders (pp. 19–30). Chichester: Wiley.

    Google Scholar 

  35. Lambert, M., Schimmelmann, B. G., Schacht, A., Karow, A., Wagner, T., Wehmeier, P. M., et al. (2009). Long-term patterns of subjective wellbeing in schizophrenia: Cluster, predictors of cluster affiliation, and their relation to recovery criteria in 2842 patients followed over 3 years. Schizophrenia Research, 107, 165–172.

    Article  PubMed  Google Scholar 

  36. Test, M. A., Greenberg, J. S., Long, J. D., Brekke, J. S., & Burke, S. S. (2005). The construct validity of a measure of subjective satisfaction with life of adults with serious mental illness. Psychiatric Services, 56, 292–300.

    Article  PubMed  Google Scholar 

  37. Priebe, S., & Fakhoury, W. (2008). Quality of life. In K. Mueser & D. Jeste (Eds.), The clinical handbook of schizophrenia. New York: Guilford.

    Google Scholar 

  38. Andresen, R., Caputi, P., & Oades, L. G. (2010). Do clinical outcome measures assess consumer-defined recovery? Psychiatry Research, 177, 309–317.

    Article  PubMed  Google Scholar 

  39. Eack, S. M., & Newhill, C. E. (2007). Psychiatric symptoms and quality of life in schizophrenia: A meta-analysis. Schizophrenia Bulletin, 33, 1225–1237.

    Article  PubMed  PubMed Central  Google Scholar 

  40. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders: DSM-IV (4th ed.). Washington, DC: American Psychiatric Association.

    Google Scholar 

  41. Eisen, S. V., Normand, S. L., Belanger, A. J., Spiro, A., & Esch, D. (2004). The revised Behavior and Symptom Identification Scale (BASISR-R): Reliability and validity. Medical Care, 42, 1230–1241.

    Article  PubMed  Google Scholar 

  42. Phelan, M., Slade, M., Thornicroft, G., Dunn, G., Holloway, F., Wykes, T., et al. (1995). The Camberwell assessment of need: The validity and reliability of an instrument to assess the needs of people with severe mental illness. British Journal of Psychiatry, 167, 589–595.

    Article  PubMed  CAS  Google Scholar 

  43. Chan, K. K. S., & Mak, W. W. S. (2014). The effects of self-stigma content and process on subjective quality of life in people with schizophrenia. Schizophrenia Research, 153 (Suppl 1), S282–S283.

    Google Scholar 

  44. Mak, W. W. S., Pang, I. H. Y., Chung, N. Y. L., Yau, S. S. W., & Tang, J. P. S. (unpublished manuscript). Effectiveness of wellness recovery action planning (WRAP) for Chinese with mental illness in Hong Kong.

  45. Joreskob, K. G., & Sorbom, D. (1981). LISREL V: Analysis of linear structural relationships by the method of maximum likelihood. Chicago: National Educational Resources.

    Google Scholar 

  46. Bentler, P. M. (1990). Comparative fit indices in structural models. Psychological Bulletin, 107, 238–246.

    Article  PubMed  CAS  Google Scholar 

  47. Bentler, P. M., & Bonnett, D. G. (1980). Significance test and goodness of fit in the analysis of covariance structures. Psychological Bulletin, 88, 588–606.

    Article  Google Scholar 

  48. Browne, M. W., & Cudeck, R. (1993). Alternative ways of assessing model fit. In K. A. Bollen & J. S. Long (Eds.), Testing structural equation models (pp. 136–162). Newbury Park, CA: Sage.

    Google Scholar 

  49. Carmines, E. G., & McIver, J. P. (1981). Analyzing models with unobserved variables. In G. M. Bohrnstedt & E. F. Borgatta (Eds.), Social measurement: Current issues (pp. 63–115). Beverly Hills: Sage.

    Google Scholar 

  50. Kline, R. B. (1998). Principles and practice of structural equation modeling. New York: Guilford.

    Google Scholar 

  51. Hoyle, R. H., & Panter, A. T. (1995). Writing about structural equation models. In R. H. Hoyle (Ed.), Structural equation modeling: Concepts, issues, and applications (pp. 158–176). Thousand Oaks, CA: Sage.

    Google Scholar 

  52. Bentler, P. M. (2003). EQS for windows (Version 6.1) [Computer software]. Encino, CA: Multivariate Software.

  53. Lysaker, P. H., Vohs, J. L., & Tsai, J. (2009). Negative symptoms and concordant impairments in attention in schizophrenia: Associations with social functioning, hope, self-esteem and internalized stigma. Schizophrenia Research, 110, 165–172.

    Article  PubMed  Google Scholar 

  54. Davidson, L. (2003). Living outside mental illness: Qualitative studies of recovery in schizophrenia. New York: New York University Press.

    Google Scholar 

  55. Roe, D., & Ben-Yishai, A. (1999). Exploring the relationship between the person and the disorder among individuals hospitalized for psychosis. Psychiatry, 62, 370–380.

    PubMed  CAS  Google Scholar 

  56. Deegan, P. (1997). Recovery and empowerment for people with psychiatric disabilities. Social Work in Health Care, 25, 11–24.

    Article  PubMed  CAS  Google Scholar 

  57. Copeland, M. E. (2002). Wellness Recovery Action Plan: A system for monitoring, reducing and eliminating uncomfortable or dangerous physical symptoms and emotional feelings. Occupational Therapy in Mental Health, 17, 127–150.

    Article  Google Scholar 

  58. Hogan, M. F. (2003). New freedom commission report: The President’s new freedom commission: Recommendations to transform mental health care in America. Psychiatric Services, 54, 1467–1474.

    Article  PubMed  Google Scholar 

  59. Ritsher, J. B., & Phelan, J. C. (2004). Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Research, 129, 257–265.

    Article  PubMed  Google Scholar 

  60. Holzinger, A., Dietrich, S., Heitmann, S., & Angermeyer, M. C. (2008). Evaluation zielgruppenorientierter Interventionen zur Reduzierung des Stigmas psychischer Krankheit. Eine systematische Ubersicht [Evaluation of target-group oriented interventions aimed at reducing the stigma surrounding mental illness. A systematic review]. Psychiatrische Praxis, 35, 376–386.

    Article  PubMed  Google Scholar 

  61. Hayes, S. C., Strosahl, K. D., & Wlison, K. G. (1999). Acceptance and commitment therapy: An experiential approach to behavior change. New York: Guilford Press.

    Google Scholar 

  62. Luoma, J. B., Kohlenberg, B. S., Hayes, S. C., Bunting, K., & Rye, A. K. (2008). Reducing self-stigma in substance abuse through acceptance and commitment therapy: Model, manual development, and pilot outcomes. Addiction Research & Theory, 16, 149–165.

    Article  Google Scholar 

  63. Chan, K. K. S., & Mak, W. W. S. (2012). Shared decision making in the recovery of people with schizophrenia: The role of metacognitive capacities in insight and pragmatic language use. Clinical Psychology Review, 32, 535–544.

    Article  PubMed  Google Scholar 

  64. Jacobson, N., & Greenley, D. (2001). What is recovery? A conceptual model and explication. Psychiatric Services, 52, 482–485.

    Article  PubMed  CAS  Google Scholar 

  65. Racenstein, J. M., Harrow, M., Reed, R., Martin, E., Herbener, E., & Penn, D. L. (2002). The relationship between positive symptoms and instrumental work functioning in schizophrenia: A 10-year follow-up study. Schizophrenia Research, 56, 95–103.

    Article  PubMed  Google Scholar 

  66. McCrone, P., Leese, M., Thornicroft, G., Schene, A., Knudsen, H. C., Vazquez-Barquero, J. L., et al. (2001). A comparison of needs of patients with schizophrenia in five European countries: The EPSILON Study. Acta Psychiatrica Scandinavica, 103, 370–379.

    Article  PubMed  CAS  Google Scholar 

  67. Middelboe, T., Mackeprang, T., Hansson, L., Werdelin, G., Karlsson, H., Bjarnason, O., et al. (2001). The Nordic Study on schizophrenic patients living in the community. Subjective needs and perceived help. European Psychiatry, 16, 207–214.

    Article  PubMed  CAS  Google Scholar 

  68. Lasalvia, A., Bonetto, C., Malchiodi, F., Salvi, G., Parabiaghi, A., Tansella, M., et al. (2005). Listening to patients’ needs to improve their subjective quality of life. Psychological Medicine, 35, 1655–1665.

    Article  PubMed  Google Scholar 

  69. Slade, M., Leese, M., Cahill, S., Thornicroft, G., & Kuipers, E. (2005). Patient-rated mental health needs and quality of life improvement. British Journal of Psychiatry, 187, 256–261.

    Article  PubMed  Google Scholar 

  70. Doughty, C., & Tse, S. (2010). Can consumer-led mental health services be equally effective? An integrative review of CLMH services in high-income countries. Community Mental Health Journal, 47, 252–266.

    Article  PubMed  Google Scholar 

  71. Davidson, L., Chinman, M. J., Kloos, B., Weingarten, R., Stayner, D. A., & Tebes, J. K. (2005). Peer support among individuals with severe mental illness: A review of the evidence (pp. 412–450). Boston: Boston University Center for Psychiatric Rehabilitation.

    Google Scholar 

  72. Wood, A. L., & Wahl, O. F. (2006). Evaluating the effectiveness of a consumer-provided mental health recovery education presentation. Psychiatric Rehabilitation Journal, 30, 46–53.

    Article  PubMed  Google Scholar 

  73. Hsiung, P. C., Pan, A. W., Liu, S. K., Chen, S. C., Peng, S. Y., & Chung, L. (2010). Mastery and stigma in predicting the subjective quality of life of patients with schizophrenia in Taiwan. Journal of Nervous and Mental Disease, 198, 494–500.

    Article  PubMed  Google Scholar 

  74. Xiang, Y. T., Weng, Y. Z., Leung, C. M., Tang, W. K., & Ungvari, G. S. (2008). Subjective quality of life in outpatients with schizophrenia in Hong Kong and Beijing: Relationship to socio-demographic and clinical factors. Quality of Life Research, 17, 27–36.

    Article  PubMed  CAS  Google Scholar 

  75. Corrigan, P. W., Rafacz, J., & Rüsch, N. (2011). Examining a progressive model of self-stigma and its impact on people with serious mental illness. Psychiatry Research, 189, 339–343.

    Article  PubMed  PubMed Central  Google Scholar 

Download references

Acknowledgments

This study is supported by Research Grant 07080161 from the Health and Health Services Research Fund (HHSRF) of Hong Kong. We would like to express our sincere gratitude to the following nongovernmental organizations and mutual support group (in alphabetical order) for facilitating us in recruiting eligible participants from their service users/members: Amity Mutual Support Society; Baptist Oi Kwan Social Service; Christian Family Services; New Life Psychiatric Rehabilitation Association; and the Society of Rehabilitation and Crime Prevention.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Winnie W. S. Mak.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Chan, K.K.S., Mak, W.W.S. The mediating role of self-stigma and unmet needs on the recovery of people with schizophrenia living in the community. Qual Life Res 23, 2559–2568 (2014). https://doi.org/10.1007/s11136-014-0695-7

Download citation

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11136-014-0695-7

Keywords

Navigation