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Children with Chronic Medical Conditions: Recommendations for School Mental Health Clinicians

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Abstract

Children with chronic medical conditions are typically included in regular education settings. School mental health clinicians can play a key role in enhancing the social and cognitive development of these children. This manuscript presents a review of literature indicating ways to assist children with medical conditions in schools. Information about assessment, family-centered interventions, and school reintegration programs is reviewed. Additionally, suggestions about how clinicians can assist with school absences, compliance with medical regimens, case management, teacher training, counseling parents, and improving social acceptance of these children are presented. Lobbying for comprehensive educational planning for children with medical conditions is a goal for the future.

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REFERENCES

  • Anderson, B., Loughlin, C., Goldberg, E., and Laffel, L. (2001). Comprehensive, family-focused outpatient care for very young children living with chronic disease: Lessons learned from a program in pediatric diabetes. Child. Serv. Soc. Policy, Res., Pract. 4: 235–250.

    Google Scholar 

  • Barrett, J. T. (2000). A school-based care management service for children with special needs. Fam. Community Health 23: 36–42.

    Google Scholar 

  • Bowman, J., and Associates, Administration for Children, Youth, and Families (1998). Caring for Children With Chronic Conditions: Training Guides for the Head Start Learning Community (DHHS Publication No. BBB23445), U.S. Government Printing Office, Washington, DC.

    Google Scholar 

  • British Columbia Department of Education (1995). Awareness of Chronic Health Conditions: What the Teacher Needs to Know, Ministry of Education, Victoria, British Columbia.

    Google Scholar 

  • Brown, R. T. (1995). Introduction of the Special Series: Cognitive and academic issues related to chronic illness. Sch. Psychol. Quarterly, 10: 271–273.

    Google Scholar 

  • Center, Y., and Ward, J. (1984). Integration of mildly handicapped cerebral palsied children into regular schools. Except. Child. 31: 104–113.

    Google Scholar 

  • da Costa, I. G., Rapoff, M. A., Lemanek, K., and Goldstein, G. L. (1997). Improving adherence to medication regimes for children with asthma and its effect on clinical outcome. J. Appl. Behav. Anal. 30: 687–691.

    Google Scholar 

  • Drotar, D. (2001). Promoting comprehensive care for children with chronic health conditions and their families: Introduction to the special issue. Child. Serv.: Soc. Policy, Res., Pract. 4: 157–163.

    Google Scholar 

  • Drotar, D., Walders, N., Burgess, E., Nobile, C., Dasari, M., Kahana, S., Miller, V., Schwartz, L., Schaefer, E., and Zebracki, K. (2001). Recommendations to enhance comprehensive care for children with chronic health conditions and their families. Child. Serv. Soc. Policy, Res., Pract. 4: 251–264.

    Google Scholar 

  • Farmer, J. E. and Peterson, L. (1995). Pediatric traumatic brain injury: Promoting successful school reentry. Sch. Psychol. Rev. 24: 230–243.

    Google Scholar 

  • Frieman, B. B., and Settel, J. (1994). What the classroom teacher needs to know about children with chronic medical problems. Child. Educ. 70: 196–201.

    Google Scholar 

  • Gordon, P. A., Feldman, D., and Ballard, E. M. (1998). Collaboration between rehabilitation psychologists and special educators when working with children with chronic health/disabling conditions. Phys. Disabil.: Educ. Relat. Serv. 17: 63–76.

    Google Scholar 

  • Graetz, B., and Shute, R. (1995). Assessment of peer relationships in children with asthma. J. Pediatr. Psychol. 20: 205–216.

    Google Scholar 

  • Haslam, R. H. A., and Valletutti, P. J. (1996). Medical Problems in the Classroom: The Teacher's Role in Diagnosis and Management, 3rd edn., Pro-Ed, Austin, TX.

    Google Scholar 

  • Hobbs, N., Perrin, J. M., and Ireys, H. T. (1985). Chronically Ill Children and Their Families, Jossey-Bass, San Francisco.

    Google Scholar 

  • Johnson, B. H., Jeppson, E. S., and Redburn, L. (1992). Caring for Children and Families: Guidelines for Hospitals, 1st edn., Association for the Care of Children's Health, Washington, DC.

    Google Scholar 

  • Johnson, M. P., Lubker, B. B., and Fowler, M. G. (1988). Teacher needs assessment for the educational management of children with chronic illnesses. J. Sch. Health 58: 232–235.

    Google Scholar 

  • Larson, G. (1988). Managing the School Age Child With a Chronic Health Condition: A Practical Guide for Schools, Families, and Organizations, Sunrise River Press, North Branch, MN.

    Google Scholar 

  • Lynch, E. W., Lewis, R. B., and Murphy, D. S. (1992). Educational services for children with chronic illnesses: Perspectives of educators and families. Except. Child. 59: 210–220.

    Google Scholar 

  • Madan-Swain, A., Frederick, L. D., and Wallander, J. L. (1999). Returning to school after a serious illness or injury. In Brown, R. T. (ed.), Cognitive Aspects of Chronic Illness in Children, Guilford Press, New York, pp. 312–332.

    Google Scholar 

  • Mescon, J. A. W., and Honig, A. S. (1995). Parents, teachers and medical personnel: Helping children with chronic illness. Early Child Dev. Care 111: 107–129.

    Google Scholar 

  • Nassau, J. H., and Drotar, D. (1997). Social competence among children with central nervous system-related chronic health conditions: A review. J. Pediatr. Psychol. 22: 771–793.

    Google Scholar 

  • National Institute on Disability and Rehabilitation Research (1998). Guidelines and Standards for Children with Special Health Needs: Bibliography of Materials From the NCEMCH Library. (NCEMCH No. EDD00064), National Center for Education in Maternal and Child Health, Arlington, VA.

    Google Scholar 

  • Patterson, J. M., and Gerber, G. (1991). Preventing mental health problems in children with chronic illness or disability. Child. Health Care 20: 150–161.

    Google Scholar 

  • Perry, J. D., and Flanagan, W. K. (1986). Pediatric psychology: Applications to the schools needs of children with health disorders. Tech. J. Remedial Educ. Couns. 2: 333–340.

    Google Scholar 

  • Phelps, L., and Landau, S. (1995). Health-related issues in early childhood (Special issue). Sch. Psychol. Rev. 24(2): 129–130.

    Google Scholar 

  • Prevatt, F. F., Heffer, R. W., and Lowe, P. A. (2000). A review of school reintegration programs for children with cancer. J. Sch. Psychol. 38: 447–467.

    Google Scholar 

  • Rodrigue, J. R., Geffken, G. R., and Streisand, R. M. (2000). Child Health Assessment: A Handbook of Measurement Techniques, Allyn & Bacon, Needham Heights, MA.

    Google Scholar 

  • Rolland, J. S. (1987). Chronic illness and the life cycle: A conceptual framework. Fam. Process 26: 203–221.

    Google Scholar 

  • Rynard, D. W., Chambers, A., Klinck, A. M., and Gray, J. D. (1998). School support programs for chronically ill children: Evaluating adjustment of children with cancer at school. Child. Health Care 27: 31–46.

    Google Scholar 

  • Sachs, M. B. (1980). Helping the child with cancer go back to school. J. Sch. Health 50: 328–331.

    Google Scholar 

  • Schuman, W. B., and La Greca, A. M. (1999). Social correlates of chronic illness. In Brown, R.T. (ed.), Cognitive Aspects of Chronic Illness in Children, Guilford Press, New York, pp. 289–311.

    Google Scholar 

  • Sexson, S., and Madan-Swain, A. (1995). The chronically ill child in school. Sch. Psychol. Q. 10: 359–368.

    Google Scholar 

  • Stein, R. E. K. (1986). Promoting communication between health care providers and educators of chronically ill children. Top. Early Child. Spec. Educ. 5: 70–81.

    Google Scholar 

  • Stein, R. E. K., Bauman, L. J., Westbrook, L. E., Coupey, S. M., & Ireys, H. T. (1993). Framework for identifying children who have chronic conditions: The case for a new definition. Journal of Pediatrics, 122: 342–347.

    Google Scholar 

  • Stein, R. E. K., and Johnson-Silver, E. (1999). Operationalizing a conceptually based noncategorical definition: A first look at U.S. children with chronic conditions. Arch. Pediatr. Adolesc. Med. 153: 68–74.

    Google Scholar 

  • Stein, R. E. K., Westbrook, L. E., and Bauman, L. J. (1997). The Questionnaire for Indentifying Children with Chronic Conditions: A measure based on a noncategorical approach. Pediatrics 99: 513–521.

    Google Scholar 

  • Tarnowski, K. J., and Brown, R. T. (1995). Psychological aspects of pediatric disorders. In Hersen M., and Ammerman, R. J. (eds.), Advanced Abnormal Psychology, Erlbaum, Hillsdale, NJ, pp. 393–410.

    Google Scholar 

  • Thies, K. M. (1999). Identifying the educational implications of chronic illness in school children. J. Sch. Health 69: 392–397.

    Google Scholar 

  • Thies, K. M., and McAllister, J. M. (2001). The Health Education and Leadership Project: A school initiative for children and adolescents with chronic health conditions. J. Sch. Health 71: 167–172.

    Google Scholar 

  • U.S. Department of Health and Human Services (1987). Surgeon General's Report on Children With Special Health Care Needs (DHHS Publication No. HRS/DMC87-2), U.S. Department of Health and Human Services, Rockville, MD.

    Google Scholar 

  • Urbano, M. T. (1992). Preschool Children With Special Health Care Needs, Singular Publishing Group, Inc. San Diego, CA.

    Google Scholar 

  • Walker, L. S., and Greene, J. W. (1991). The Functional Disability Inventory: Measuring a neglected dimension of child health status. J. Pediatr. Psychol. 16: 39–58.

    Google Scholar 

  • Weitzman, M., Klein-Walker, D., and Gortmaker, S. (1986). Chronic illness, psychosocial problems, and school absences: Results of a survey of one county. Clin. Pediatr. 25: 137–141.

    Google Scholar 

  • Worchel-Prevatt, F. F., Heffer, R. W., Prevatt, B. C., Miner, J., Young-Saleme, T., Horgan, D., Lopez, M., Rae, W. A., and Frankel, L. (1998). A school reentry program for chronically ill children. J. Sch. Psychol. 36: 261–279.

    Google Scholar 

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Correspondence to Laura A. Nabors.

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Nabors, L.A., Lehmkuhl, H.D. Children with Chronic Medical Conditions: Recommendations for School Mental Health Clinicians. Journal of Developmental and Physical Disabilities 16, 1–15 (2004). https://doi.org/10.1023/B:JODD.0000010036.72472.55

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