Abstract
As the technosciences, including genomics, develop into a global phenomenon, the question inevitably emerges whether and to what extent bioethics can and should become a globalised phenomenon as well. Could we somehow articulate a set of core principles or values that ought to be respected worldwide and that could serve as a universal guide or blueprint for bioethical regulations for embedding biotechnologies in various countries? This article considers one universal declaration, the UNESCO Declaration on Bioethics and Human Rights (2005a). General criticisms made in a recent special issue of Developing World Bioethics are that the concepts used in the Declaration are too general and vague to generate real commitment; that the so-called universal values are not universal; and, that UNESCO should not be engaged in producing such declarations which are the domain of professional bioethicists. This article considers these and other criticisms in detail and presents an example of an event in which the Declaration was used: the request by the Republic of Sakha, in Siberia, for a UNESCO delegation to advise on the initiation of a bioethics programme. The Declaration was intended to provide an adequate “framework of principles and procedures to guide states in the formulation of their legislation, policies and other instruments in the field of bioethics” (article 2a). The Declaration was produced, and principles agreed upon, in an interactive and deliberative manner with world-wide expert participation. We argue that the key issue is not whether the general principles can be exported worldwide (in principle they can), but rather how processes of implementation and institutionalisation should take shape in different social and cultural contexts. In particular, broader publics are not routinely involved in bioethical debate and policy-making processes worldwide.
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References
Adorno, R. 2007. Global bioethics at UNESCO: In defence of the Universal Declaration on Bioethics and Human Rights. Journal of Medical Ethics 33: 150–154.
Bangkok Final Declaration of the Regional Meeting for Asia of the World Conference on Human Rights. 1993. http://www.unhchr.ch/html/menu5/wcbangk.htm (accessed 21st May 2009).
Benatar, D. 2005. The trouble with universal declarations. Developing World Bioethics Special Issue 5(3): 220–224.
Cavalli-Sforza, L.L. 1994. The history and geography of human genes. Princeton: Princeton University Press.
European Commission. 2007. Public engagement in Science. Portuguese Presidency Conference ‘The Future of Science and Technology in Europe’, Lisbon, 8–10 October 2007. Report of the Science in Society Session.
Harris, J. 2005. Sex selection and regulated hatred. Journal of Medical Ethics 31: 291–294.
Häyry, M. and T. Takala. 2005. Human dignity, bioethics and human rights. Developing World Bioethics Special Issue 5(3): 225–233.
Human Fertilisation and Embryology Authority (HFEA). Reports of meetings and consultation reports available at http://www.hfea.gov.uk/ (accessed 21st May 2009).
Human Fertilisation and Embryology Authority (HFEA). 2003. Sex selection: options for regulation para. 147 http://www.hfea.gov.uk/docs/Final_sex_selection_main_report.pdf (accessed 21st May 2009).
Human Genome Organisation (HUGO) Ethics Committee. http://www.hugo-international.org/comm_hugoethicscommittee.php (accessed 21st May 2009).
Human Genome Organisation (HUGO) Ethics Committee. 2007. HUGO statement on pharmacogenomics (PGx): Solidarity, equity and governance genomics Society and Policy 3(1): 44-47. http://www.hss.ed.ac.uk/genomics/documents/HUGOGSPVol3No12007.pdf (accessed 21st May 2009).
Jing-Bao, N. 2005. Cultural values embodying universal norms: A critique of a popular assumption about cultures and human rights. Developing World Bioethics Special Issue 5(3): 251–257.
Landman, W. and U. Schüklenk. 2005. Editorial. Developing World Bioethics Special Issue. 5 (3): iii-vi.
Levitt, M., K. Weiner, and J. Goodacre. 2005. Gene week: A novel way of consulting the public. Public Understanding of Science 14: 67–79.
Macklin, R. 2003. Editorial: Dignity is a useless concept. BMJ 327: 1419–1920. http://www.bmj.com/cgi/content/full/327/7429/1419 (accessed 21st May 2009).
Nuffield Council on Bioethics http://www.nuffieldbioethics.org/go/publications/latest_30.html (accessed 21st May 2009).
Qui, R. 1993. Bioethics in developing countries. Bioethics 7(2/3): 108–125.
Rawlinson, M.C. and A. Donchin. 2005. The quest for universality: Reflections on the universal draft declaration on bioethics and human dignity. Developing World Bioethics Special Issue 5(3): 258–266.
Shetty, P. 2005. UNESCO guidance on ethics and human rights slammed. Science and Development Network. http://www.scidev.net/en/health/news/unesco-guidance-on-ethics-and-human-rights-slammed.html (accessed 21st May 2009).
Ten Have, H. 2006. The activities of UNESCO in the area of ethics. Kennedy Institute of Ethics Journal 16(4): 333–351.
Ten Have, H.A.M.J. and M.S. Jean (eds). 2009. The UNESCO Universal Declaration on Bioethics and Human Rights. Background, principles and application. Paris: UNESCO.
UNESCO. Different stages in the elaboration of the Universal Declaration on Bioethics and Human Rights. http://portal.unesco.org/shs/en/ev.php-URL_ID=3850&URL_DO=DO_TOPIC&URL_SECTION=201.html (accessed 21st May 2009).
UNESCO. 2003. 32nd Session of General Conference (32 C/Res.24). http://portal.unesco.org/shs/en/ev.php-URL_ID=1883&URL_DO=DO_TOPIC&URL_SECTION=201.html (accessed 21st May 2009).
UNESCO. Division of Ethics of Science and Technology. 2004. First meeting of the IBC Drafting Group for the Elaboration of a Declaration on Universal Norms on Bioethics. Final report. http://portal.unesco.org/shs/en/files/5700/10899699971Rap_Gred1_en.pdf/Rap_Gred1_en.pdf (accessed 21st May 2009).
UNESCO. 2005a. Declaration on Bioethics and Human Rights. http://portal.unesco.org/shs/en/ev.php-URL_ID=1372&URL_DO=DO_TOPIC&URL_SECTION=201.html (accessed 21st May 2009).
UNESCO. 2005b. Results of the written consultation of the 3rd outline of the text of a declaration on universal norms on bioethics. http://portal.unesco.org/shs/en/files/7190/11062332491Consultation_en.pdf/Consultation_en.pdf (accessed 21st May 2009).
Van den Belt, H. and J. Keulartz. 2007. Worldwide cultural differences in socio-ethical views in relation to biotechnology. A report commissioned by the COGEM (Netherlands Commission on Genetic Modification) http://www.cogem.net/ContentFiles/CGM2007-05%20Worldwide%20Cultural%20Differences1.pdf (accessed 21st May 2009).
Williams, J. 2005. UNESCO’s proposed declaration on Bioethics and Human Rights — A bland compromise. Developing World Bioethics Special Issue 5(3): 210–215.
Zwart, H. 2007. Statements, declarations and the problem of ethical expertise [Editorial]. Genomics, Society & Policy 3(1): ii–iv.
Zwart, H. 2008. Challenges of macro-ethics: Bioethics and the transformation of knowledge production. Journal of Bioethical Inquiry 5(4): 283–293.
Acknowledgment
The authors were part of a delegation to Yakutsk, Republic of Sakha led by Henk ten Have, Director of the UNESCO Division of Ethics of Science and Technology. The support of UNESCO for this visit is gratefully acknowledged.
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Levitt, M., Zwart, H. Bioethics: An Export Product? Reflections on Hands-On Involvement in Exploring the “External” Validity of International Bioethical Declarations. Bioethical Inquiry 6, 367–377 (2009). https://doi.org/10.1007/s11673-009-9168-z
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DOI: https://doi.org/10.1007/s11673-009-9168-z