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Older family carers in rural areas: experiences from using caregiver support services based on Information and Communication Technology (ICT)

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Abstract

The aim of this intervention study was to illuminate the meaning of ICT-based caregiver support as experienced by older family carers living in vast rural areas, caring for a spouse at home. In order to access, the support service participants were provided with a computer and high speed Internet in their homes. Semi structured webcam-interviews were carried out with 31 family carers. A strategy for webcam interviewing was developed to ensure quality and create a comfortable interview situation for the family carers. Interviews were analysed using content analyses, resulting in the themes: Adopting new technology with help from others and Regaining social inclusion. The results indicate that ICT-based support can be valuable for older family carers in rural areas as it contributes to improve quality in daily life in a number of ways. In order to fully experience the benefits, family carers need to be frequent users of the provided support. Adequate training and encouragement from others were essential in motivating family carers to use the support service. Access to Internet and webcamera contributed to reducing loneliness and isolation, strengthening relationships with relatives living far away and enabled access to services no longer available in the area. Use of the ICT-service had a positive influence on the relationship between the older carer and adult grandchildren. It also contributed to carer competence and promote feelings of regaining independence and a societal role.

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References

  • Clare L (2002) We’ll fight it as long as we can: Coping with the onset of Alzheimer’s disease. Aging Ment Health 6(2):139–148

    Article  Google Scholar 

  • Denscombe M (2010) The Good Research Guide: for small-scale social research, 4th edn. Open University Press, Buckingham

    Google Scholar 

  • Eide H, Eide T (2009) Omvårdnadsorienterad kommunikation: relationsetik, samarbete och konfliktlösning, 2nd edn. Studentlitteratur, Lund

    Google Scholar 

  • Ekwall A, Sivberg B, Hallberg IR (2004) Dimensions of informal care and quality of life among elderly family caregivers. Scand J Caring Sci 18(3):239–248. doi:10.1111/j.1471-6712.2004.00283.x

    Article  Google Scholar 

  • European Commission (2009) The 2009 Ageing Report: Economic and budgetary projections for the EU-27 Member States (2008–2060), European Commission—DG for Economic and Social Affairs, Economic Policy Committee. http://europa.eu/epc/pdf/2009_ageing_report.pdf. Accessed 6 July 2012

  • European Commission, Social Affairs and Equal Opportunities DG (2008) Long-term care in the European Union. Commission Européenne, Bruxelles. http://ec.europa.eu/social/main.jsp?catId=792&langId=en. Accessed 26 Aug 2012

  • Geurts T, Poortman A-R, van Tilburg T, Dykstra PA (2009) Contact between grandchildren and their grandparents in early adulthood. J Fam Issues 30(12):1698–1713. doi:10.1177/0192513x09336340

    Article  Google Scholar 

  • Goll M (2010) Ageing in the European Union: Where Exactly? Rural areas are losing the young generation quicker than urban areas. European Commission: Eurostat. http://epp.eurostat.ec.europa.eu/portal/page/portal/eurostat/home/. Accessed 12 Aug 2012

  • Graneheim UH, Lundman B (2004) Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 24(2):105–112

    Article  Google Scholar 

  • Hoffmann F, Rodrigues R (2010) ‘Informal Carers – Who takes care of them?’ Policy Brief, April 2010. European Centre for Social Welfare Policy and Research Web. http://www.euro.centre.org/detail.php?xml_id=1714. Accessed 15 Aug 2012

  • Huber M, Stanciole A, Wahlbeck K, Tamsma N, Torres F, Jelfs E, Bremner J (2008) Quality in and equality of access to healthcare and services. European Centre for Social Welfare Policy and Research Web. http://www.euro.centre.org/detail.php?xml_id=866. Accessed 28 Aug 2012

  • Huber M, Knottnerus JA, Green L, Horst Hvd, Jadad AR, Kromhout D, Leonard B, Lorig K, Loureiro MI, Meer JWMvd, Schnabel P, Smith R, Weel Cv, Smid H (2011) How should we define health? BMJ 343. doi: 10.1136/bmj.d4163

  • Innes A, Morgan D, Kostineuk J (2011) Dementia care in rural and remote settings: A systematic review of informal/family caregiving. Maturitas 68(1):34–46

    Article  Google Scholar 

  • Jarrod K, Yeandle S (2009) A weight off my mind. Carers Scotland and JIT, Edinburgh

    Google Scholar 

  • Kröger T (ed) (2003) Families, work and social care in Europe. European Commission, Brussels

    Google Scholar 

  • Lamura G, Mnich E, Nolan M, Wojszel B, Krevers B, Mestheneos L, Döhner H (2008) Family carers’ experiences using support services in Europe: Empirical evidence from the EUROFAMCARE study. Gerontologist 48(6):752–771. doi:10.1093/geront/48.6.752

    Article  Google Scholar 

  • Larsson K (2006) Kvarboende eller flyttning på äldre dagar—en kunskapsöversikt. Stiftelsen Stockholms läns Äldrecentrum, Stockholm

    Google Scholar 

  • Lauriks S, Reinersmann A, Van der Roest HG, Meiland F, Davies R, Moelaert F, Mulvenna MD, Nugent CD, Dröes R-M (2007) Review of ICT-based services for identified unmet needs in people with dementia. Ageing Res Rev 6:223–246

    Article  Google Scholar 

  • Magnusson L, Hanson E, Brito L, Berthold H, Chambers M, Daly T (2002) Supporting family carers through the use of information and communication technology: the EU project ACTION. Int J Nurs Stud 39(4):369–381

    Article  Google Scholar 

  • Magnusson L, Hanson E, Borg M (2004) A literature review study of information and communication technology as a support for frail older people living at home and their family carers. Technol Disabil 16(4):223–235

    Google Scholar 

  • Magnusson L, Hanson E, Nolan M (2005) The impact of information and communication technology on family carers of older people and professionals in Sweden. Ageing Soc 25:693–713

    Article  Google Scholar 

  • Malterud K (2009) Kvalitativa metoder i medicinsk forskning: en introduktion, 2nd edn. Studentlitteratur, Lund

    Google Scholar 

  • Marin B, Leichsenring K, Rodrigues R, Huber M (2009) Who Cares? Care coordination and cooperation to enhance quality in elderly care in the European Union Paper presented at the Conference on Healthy and Dignified Ageing, Stockholm, 15–16 Sep. http://www.pascenter.org/publications/publication_home.php?id=1004. Accessed 23 Aug 2012

  • McConaghy R, Caltabiano ML (2005) Caring for a person with dementia: Exploring relationships between perceived burden, depression, coping and well-being. Nurs Health Sci 7(2):81–91. doi:10.1111/j.1442-2018.2005.00213.x

    Article  Google Scholar 

  • O’Reilly M, Strong J (1997) Caring for someone with dementia in a rural town. Part 1. Family and friends. Aust J Ageing 16(4):190–193

    Article  Google Scholar 

  • Patton MQ (2002) Qualitative research & evaluation methods, 3rd edn. Sage Publications, Thousand Oaks

    Google Scholar 

  • Phillipson C, Scharf T (2005) Rural and urban perspectives on growing old: developing a new research agenda. Eur J Ageing 2:67–75

    Article  Google Scholar 

  • Polit DF, Tatano Beck C (2008) Nursing research. Generating and assessing evidence for nursing practice. 9th edn. Lippincott Williams & Wilkins, Philadelphia

  • Powell J, Chiu T, Eysenbach G (2008) A systematic review of networked technologies supporting carers of people with dementia. J Telemed Telecare 14:154–156

    Article  Google Scholar 

  • Schmidt A, Chiatti C, Fry G, Hanson E, Magnusson L, Socci M, Stückler A, Széman Z, Barbabella F, Hoffmann F, Lamura G (2011) Analysis and Mapping of 52 ICT-based initiatives for caregivers Deliverable 2.3. European Commission, Joint Research Centre, Institute for Prospective Technological Studies Web. Accessed 20 Aug 2012

  • Schulz R (2001) Some critical issues in caregiver intervention research. Aging Ment Health 2(Supplement 1):112–115

    Google Scholar 

  • Wenger GC, Burholt V (2001) Differences over time in older people’s relationships with children, grandchildren, nieces and nephews in rural North Wales. Ageing Soc 21:567–590

    Google Scholar 

  • Wilson G, Fearnley K (2007) The dementia epidemic: Where Scotland is now and the Challenge Ahead. Alzheimer Scotland, Edinburgh

    Google Scholar 

  • Winqvist M (2010) Individualisering, utvärdering och utveckling av anhörigstöd. Kunskapsöversikt 2010:2. Nationellt kompetenscentrum Anhöriga, Kalmar

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Acknowledgments

Our sincerest thanks to the local municipalities and support nurses in Jämtland, Härjedalen, Västerbotten, Lappland, Ångermanland and Medelpad, Sweden, who provided the study participants with education and technical support. We further want to thank the funding organisations supporting our study: Association of Local Authorities in Västernorrland County, Swedish Institute of Assistive Technology, Västernorrland County Council, Telia and Mid Sweden University.

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Correspondence to Madeleine Blusi.

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Communicated by Howard Litwin.

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Blusi, M., Asplund, K. & Jong, M. Older family carers in rural areas: experiences from using caregiver support services based on Information and Communication Technology (ICT). Eur J Ageing 10, 191–199 (2013). https://doi.org/10.1007/s10433-013-0260-1

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