Abstract
Patient’s experiences and patient surveys are increasingly being used for the evaluation of the quality of health care. Patient information is valuable input when we aim to improve healthcare services. The aim of this study was to assess Danish cancer patients’ experiences and assessment of the health care they have received, in regard to access to diagnostics, coordination and continuity of care, information and communication and involvement of patients and relatives. Questions and the opportunity to comment in free text were distributed to 6,720 newly diagnosed cancer patients in the summer 2010. A total of 4,346 patients (64.7 %) returned a questionnaire and were finally included in the study. The results exposed patient experienced problems with regard to easier access to diagnostics, GP’s responsiveness to patients’ worries, better coordination between different healthcare units and better involvement of patient and relatives. The study indicates that women, younger and higher educated patients tend to be less satisfied with the health care they received. This study shows that even though the majority of patients are satisfied with the quality of health care, there is room for improvements with regard to better access to diagnostics, healthcare professionals’ responsiveness to patients, improved coordination and involvement of patient and relatives. There is a need to focus more on individual needs and patient-centered care.
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References
Collins K, O’Cathain A (2003) The continuum of patient satisfaction—from satisfied to very satisfied. Soc Sci Med 57(12):2465–2470
Crow R, Gage H, Hampson S, Hart J, Kimber A, Storey L, Thomas H (2002) The measurement of satisfaction with healthcare: implications for practice from a systematic review of the literature. Health Technol Assess 6(32):1–244
Davies EA, Meterko MM, Charns MP, Seibert MEN, Cleary PD (2011) Factors affecting the use of patient survey data for quality improvement in the Veterans Health Administration. BMC Health Serv Res 12(11):334
Grønvold M, Pedersen C, Jensen CR, Faber MT, Johnsen AT (2006) The cancer patient’s world—an investigation of needs among Danish cancer patients. Danish Cancer Society, Copenhagen (in Danish)
Haggerty JL (2010) Are measures of patient satisfaction hopelessly flawed? BMJ 341:c4783
Haggerty JL, Reid RJ, Freeman GK, Starfield H, Adair CE, Mckendry R (2003) Continuity of care—a multidisciplinary review. BMJ 327(7425):1219–1221
Hansen RP (2008) Delay in the diagnosis of cancer. PhD thesis. Research Unit and Department of General Practice, Faculty of Health Sciences, University of Aarhus
Institute of medicine (2001) Crossing the quality chasm—a new health system for the 21st century. National Academy Press, Washington
Knudsen JL, Olsen GS (2012) Patient-centered care in Danish hospitals will heighten the quality. Ugeskr Laeger 174(45):2791–2795 (in Danish)
Kvale S, Brinkmann S (2009) Interview. Introduktion til et håndværk, Hans Reitzels Forlag
Ministry of Health and Prevention (2009) National survey of cancer patients’ experiences. Unit of patient-perceived quality on behalf of the Ministry of Health and Prevention. ISBN: 978-87-91520-29-7
Riiskjaer E, Ammentorp J, Nielsen JF, Kofoed PE (2010) Patient surveys—a key to organizational change? Patient Educ Couns 78(3):394–401
Riiskjær E, Ammentorp J, Kofoed PE (2012) The value of open-ended questions in surveys on patient experience: number of comments and perceived usefulness from a hospital perspective. Int J Qual Health Care 24(5):509–516
Risberg T, Sørbye SW, Norum J, Wist EA (1996) Diagnostic delay causes more psychological distress in female than in male cancer patients. Anticancer Res 16(2):995–999
Sitzia J, Wood N (1997) Patient satisfaction: a review of issues and concepts. Soc Sci Med 45(12):1829–1843
The Picker Institute (2013) Principles of patient-centred care. http://pickerinstitute.org/about/picker-principles/. Accessed 21 Oct 2013
Tørring ML, Frydenberg M, Hansen RP, Olesen F, Vedsted P (2013) Evidence of increasing mortality with longer diagnostic intervals for five common cancers: a cohort study in primary care. Eur J Cancer 49(9):2187–2198
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Sandager, M., Sperling, C., Jensen, H. et al. Danish cancer patients’ perspective on health care: results from a national survey. Cogn Tech Work 17, 35–44 (2015). https://doi.org/10.1007/s10111-014-0301-3
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DOI: https://doi.org/10.1007/s10111-014-0301-3